LDN

[Cheriisa]

Hi, anyone using LDN for RA?

[nablur]

What is LDN?

[Nsmith13 in reply to nablur]

Naltrexone I think

[sylvi in reply to nablur]

I was going to ask the same question.xxx

[helixhelix in reply to nablur]

Low dose Naltrexone....

If you put LDN in search box you will find previous posts. There are a couple of people on here who use it, and posts with links to useful stuff.

[Simba1992]

I have been using LDN since diagnosis 2015. Here is the latest information pack. I would not be without it. Some RA sufferers have really great benefits. About 15% do not have any, but it's really worth trying since it can be taken even with RA meds an often makes it possible to decrease these. Definately takes down pain level and decreases flares.

ldnresearchtrust.org/2018-f...

[Mmrr in reply to Simba1992]

Simba, I am flaring at the moment, its miserable. I have MRIs of my hands and feet booked for 4 th Jan and will then be recalled to rheumatology. I don't know how long that will take.

I'm thinking of trying LDN. Can I ask where you get your prescriptions from ?

Is your rheumatologist aware that you take LDN, your GP ? My GP isn't great, not sure if I would consult them about it.

[Simba1992 in reply to Mmrr]

So sorry to hear you're having a rough time with your flare Mmrr:(I actually had my only flare when I was off LDN and thought it didn't help. Will never make this mistake again! Had to go on pred ( first time in three years) to get it settled.

I think most rheumies are ok with LDN if you give them the material for educating doctors that LDN trust has on their pages. They are not willing to perscribe it though because they are very much restricted to the gold standard. I think you can find the contact info on the above link. For me it has really been working fine. I get the LDN sent to me to France beginning of every month.

I do not have any contact with rheumies. They are far from helpful and bullies at worst! My GP helps me when I need tests to follow up situation, and in perscribing pred or antibiotics that I have been trying out now for a week ( Doxymycin) There is no way to get LDN in France so I get it From the UK.

[Mmrr in reply to Simba1992]

thanks

[Hessie5]

Interesting I am willing to try anything right now - thanks

[Simba1992 in reply to Hessie5]

Some RA sufferers have amazing results with LDN. Unforunately I am not one of them. My benefits have been that I sleep well, keeps flares away, takes down inflammation and pain to a certain degree, do not have to take NSAIDs only two Alcaselzers per day. (780mg aspirine). Most RA sufferers need to take it fo 4-6ms to see the effect. There are those however who see the effect more quickly. Do try it, it's definitely worth it.👍🏻Simba