hey : hey all how are yous keeping? am i the only young... - NRAS

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hey

Annie122 profile image
33 Replies

hey all how are yous keeping? am i the only young person with ra on here im 32 also there seems to be more woman that suffer from ra?

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Annie122 profile image
Annie122
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33 Replies
oKerrio profile image
oKerrio

I’m 36, diagnosed at 35 I also have Spina Bifida from birth.

Annie122 profile image
Annie122 in reply tooKerrio

hello thanks for the reply i hope your keeping well at the moment?

oKerrio profile image
oKerrio in reply toAnnie122

Yes thanks not to bad hope you are ok too.

oldtimer profile image
oldtimer

Yes, there are definitely more women than men with Rheumatoid Disease. But any age...from people who develop it as children (JRA) through the twenties, thirties, etc. I started at the age of 37, and have been very fortunate to have been treated aggressively so that 40 years later I'm still suffering but still going.

I'm sure you will get lots of replies from people and welcome to this place where people really do understand if you need to rage or moan or celebrate!

Annie122 profile image
Annie122 in reply tooldtimer

thanks for the reply ive had ra from i was 16 im now 32 also had a hip replacement 6 years ago

helixhelix profile image
helixhelix

Quite a few people in their 20's and 30's on here....but maybe they're all out partying on a Saturday night?

And yes, women get RA three times more than men.

We are a mixed group, some older than others and very wise when it comes to helping others diagnosed with RA. Do t know where I would be today without this group and the support of its members

Annie122 profile image
Annie122

i was diagnosed at 16 ive had it 17 years now im not too bad at the minute what treatment are you on?

wishbone profile image
wishbone in reply toAnnie122

I never imagined you were only in your thirties when spoke earlier. Sorry to hear you got RA at such an early age, but at least it seems to be under reasonable control and long may that continue.

Good luck.

Annie122 profile image
Annie122 in reply towishbone

No worries yh its pretty much under control still get pain daily but its copeable

in reply toAnnie122

That's poop having it so young. 😕

Annie122 profile image
Annie122 in reply to

It is

Annie122 profile image
Annie122

thank you x

Ssmart profile image
Ssmart

I’m 38 was diagnosed under a year ago, been on hydroxy and ibuprofen for about 8 months, I have had stiff hands still and my middle finger sometimes locks for a few seconds, and hands a bit stiff in mornings but less than they were 6 months ago, as I couldn’t even lift a kettle when I got up back then ...but for two days now I’ve had a nasty shoulder pain - not sure if I’ve overdone it’s been decorating and lifting things at work... think I took for granted how “normal” I was feeling without any major pains.... whatever it is I’m hoping it subsides as quick as it’s started!

All the best to everyone in their childhood, 20s 30s 40s 50s 60s 70s 80s and beyond! X

juneann profile image
juneann

Thirty two isn't that young. I started at 42 whilst many start much much later and some younger, even children and teens.

I'm 16 in my head...does that count?

Welcome! Loads of young folks on here. To be honest half the time I've no clue who is male and who is female. Doesn't really matter...I just converse .

ruth_p profile image
ruth_p

Hi Annie, I’m 37 and developed my JIA at 14. I’ve had both my hips replaced and had my left one re done 9 weeks ago. I’m usually well and work full time as a Reception class teacher (although obviously off at the moment 😉).

in reply toruth_p

Sorry you had it so young Ruth. Always feel bad for children with this awful disease.

Annie122 profile image
Annie122 in reply toruth_p

Hi sorry to hear u have it young too I’ve had my right hip replaced x

Fra22-57 profile image
Fra22-57

I think women open up more about there ailments than men so maybe majority of those who have it wouldn't dream of going on a forum like this.

Women like to natter more too 😊

Annie122 profile image
Annie122 in reply toFra22-57

Lol 😂👍

Forgot to say...32 isn't that young! I thought you were going to say 19 or something! 😂 Dreadful at whatever age but particularly bad for kiddies I feel. That's just plain cruel.

Annie122 profile image
Annie122 in reply to

I’ve had ra from I was 16

in reply toAnnie122

I know, I saw I mentioned it. 😁 But not clearly I think.

CloudTreeDrive13 profile image
CloudTreeDrive13

You are not alone. Have had R A for 30 years. Diagnosed at 28 years old. Still going lol.

heyitsmee profile image
heyitsmee

Hey im 23 and was diagnosed with RA one year ago! You're not alone

trekdomanerider profile image
trekdomanerider

Hi, I feel the odd one out too! I’m male, diagnosed seronegative last year at 73 years old. But I’m maintaining my addiction for cycling and did the iconic Tour de France Mont Ventoux mountain climb last year. Any keen cyclists out there?

Purpleamber profile image
Purpleamber

Hi Annie, I've been diagnosed at age of 25.. I'm 26 now.. no good at all!

Witness2 profile image
Witness2

What a long suffering bunch we are! RA is no respecter of age, can get you as a young child and as Trekdomanrider proves, as senior as 73. I was diagnosed at 24, am now 61. My rheumatologist calls me ‘the history of Rheumatoid’ because I’ve been on all the old drugs and my hands and feet are pretty done for really. 12 ops so far, one more on Thursday, (just as well I’m not superstitious) but I count myself lucky. I’ve met people at NRAS events who are far worse off. The young amongst us are unlikely to be so affected with the advent of Biologics and I imagine stem cell treatments will come along eventually to eradicate this disease. Anyway, we’re all to be admired!

12Chrissy34 profile image
12Chrissy34

I'm 28, diagnosed at 26!

calamityjane1971 profile image
calamityjane1971

I was 21 when I was diagnosed. Still here 26 years later!

Catty1988 profile image
Catty1988

Hey Annie, i was diagnosed this year just before I turned 30.

16 is so young to be dealing with RA and ur hip replacement recently, I hope ur keeping well :-)

I think 32 is still young. Lol.

I did find the age thing hard when trying to access RA Support groups in the community as many were a lot older in age and the themes of the sessions weren't relevant to my age group so I stopped attending. Ive found this forum great though everyone has experiences and advice which is so helpful especially to someone new to RA like me.

Hope ur having a great day!

Annie122 profile image
Annie122

Hey sorry to hear u also have ra its not easy at times... im doing fairly well at the minute thanks hows u? I do get flare ups still what treatment r u on? Xx

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