I've waited for a year to see you again, hoping that this will be the appointment that gets me a diagnosis. The nurse in the clinic comments on how high my blood pressure is, I suggest that it is probably stress related. She answers that there's nothing to be stressed about! If only she knew how much hope patients who don't 'tick the boxes' place on these appointments. Eventually I get called in to see the consultant, I hand you my carefully considered summary of my symptoms over the last year. You look at it like it's some sort of sensationalist newspaper article. I spent hours typing it so that it was as concise and free of emotional overtones as possible; I don't want you to have an excuse to label me as 'anxious'. You tell me that you can only consider one of my symptoms from the list, I frantically try to make a decision that will point you away from your preferred fibro diagnosis. I settle on my SI joints and tendon problems, whilst making a point of trying to tell you about the small patches of psoriasis that I've had and the newly discovered family history of psoriasis. You look at me with a look that says you are humouring me at best. I offer you images on my phone, you say that unless you see it for yourself 'it hasn't happened'.
All the SI joint provocation tests are positive, but you announce that they are 'fine'. I wonder if I am in the same room as you! Grudgingly you write a request for an MRI scan (this shows bone oedema, but apparently not enough for a diagnosis). You again suggest fibro, I know this doesn't fit my symptoms, but I'm on the verge of tears so I don't bother to argue. You take me off hydroxy (which was helping), because of the psoriasis that you don't believe I have. You suggest I take Ibuprofen, I point out that I am allergic to it, you shrug your shoulders and say that you will try and see me in six months. I leave the room with the familiar hopeless feeling that you think I am making all this up. I go and sit my car and cry whilst resolving to cancel any future appointments to avoid this hideous roller-coaster of hope and disappointment.
I'm sure common sense will prevail tomorrow, but I just wish you had some insight into how you make me (and many others) feel with your indifference.