Not sure if it's working : Hi IV been on benepali for... - NRAS

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Not sure if it's working

mbw159 profile image
4 Replies

Hi IV been on benepali for 2years but not sure if it's working I go see my rhumy next week and will see what he says I'm just worried that he will take me off them and not replace it with any others injection as IV been on enbrel and ended up with something called macjjocolist disease don't think IV spelt it right tho and he said he's not sure if he could put me on a different injection due to this as benepali is milder than others that's probably why it doesn't work as well any one else feel this is true thanks in advance Marie 😊😊😊

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mbw159
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4 Replies

I guess if the cause of Majocchi disease might be due to an immunological problem its difficult to sort out what causes what. Try and tell your Rheum your concerns. I hope you feel heard and that he can balance one issue against another. All the best.

oldtimer profile image
oldtimer

It might be worth looking at the treatments pages on the NRAS site so that you can ask your medical team about the various treatments and whether they would be suitable?

zeus49 profile image
zeus49

Hi mbw159 I'm zeus49 I've been on enbrel for 2 years now. My rheumatologist has just put me on benapli and I'm not sure about this drug at the moment. I've suddenly developed pain in the neck which is going up the back of my skull and causing me bad migraines I'm taking 8paracetamol a day but it's not moving my pain. I've had it xrayed and I'm waiting for the results from my rheaumy. I've on l y been on Bengali 2 weeks and I really don't know if it's doing its job yet.

zeus49 profile image
zeus49

I mean benapli

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