weight gain: hi i am just asking if anyone else has... - NRAS

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weight gain

mogs231 profile image
14 Replies

hi i am just asking if anyone else has gained weight due to all meds or is it just a change of lifestyle? would be interested to see

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mogs231 profile image
mogs231
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14 Replies
cshah profile image
cshah

Hi mogs, what meds are you on? I started enbrel in February of this year and by June I had gained 15 pounds - heavier than I’ve ever been despite being more active and keeping eating habits the same. I’ve since started a new diet that severely restricts my carb intake. I’ve now lost nearly all the weight I had gained. I’m also flaring up again after a while feeling pretty good. Not sure if it’s the new diet triggering my flare or what? Always seems to be a trade off. I miss the good old days when I didn’t have this cross to bear.

mogs231 profile image
mogs231 in reply to cshah

im on methotrexate and hydrxychloroquine

JanetMaryBishop profile image
JanetMaryBishop in reply to mogs231

I’m on Methotrexate and Hydroxychloroquine and at the same time following Slimming World. I have managed to lose 1 st 12lb but everyone else in the class has lost much more in the same time so I think the reason for that is that The DMARDS alter your metabolism. I have cut back drastically and should be losing 2-3 lbs per week but I have averaged around 1lb per week over 6 months so that is proof enough for me. I will never be able to eat “normally” again I don’t think. J

Pulfs profile image
Pulfs in reply to JanetMaryBishop

Hi I'm on same drugs as you plus retuximab every 6mths and also go to slimming world and I my weight is slow and sometimes non existent. I'm convinced it's the med as others that are following it seem to be doing better. Just have to keep plodding on so don't gain any more. Something else we have to contend with. Good luck with trying to lose.x

JanetMaryBishop profile image
JanetMaryBishop in reply to Pulfs

and you Pulfs - nothing else for it but to keep going, because I do feel better for it!

nanny_bee profile image
nanny_bee

I have gained weight due to meds and being less active due to sheer fatigue. After good kick up butt and coming off baricitinib I have turned a corner. Lost 1 1/2 stone so far and more to go. Started aqua fit and after long time can now walk the dog. Still get pain and occasional flare but am learning to manage them

sylvi profile image
sylvi

I did with the steroids and i put on 4stone in four months. I ended up 3yrs ago having weight loss surgery and i have since lost 5stone in weight,but i am stuck at the moment.xxxx

Nicole2000 profile image
Nicole2000

Yes, I’ve moved from 8 to 11 stone in over 2 years. It’s the meds, reduced mobility (caused by pain) and diet. I’m trying to change this all now but it will take time.

Nicole x

dbestdeb profile image
dbestdeb

I’ve gained also. For me it was due to steroids and the lifestyle change. I became less active due to pain and fatigue. Off steroids and on Enbrel now and I’ve lost about 12 pounds, but I’m going to have to either starve or force myself to get off the couch and get active if I want to lose move. So far I haven’t found the motivation to do either.

mogs231 profile image
mogs231

i also dont seem to have an appetite and only eat small portions but still gaining weight

Uga35570 profile image
Uga35570

Yes me too. Oddly although been on mxt by injection for 4 years have put on half stone in the last few months. Wasn't sure because I have been less active through knee problems and pretty severe fatigue. Now it seems certain it's the meds now battling without much success to loose the weight again.

DiHi profile image
DiHi

I put on so much weight! And went from a dress size 10 to a 16! That was 12 years ago,since then my weight has got under control,as has my meds-don’t do what I did ,keep your clothes you will easily be wearing them again

sjhewitt42 profile image
sjhewitt42

I definitely cannot loose weight like I could before meds. I have been stuck at 12 stone despite my total lack of appetite due to Leflunomide I think the steroids and biologics definitely don’t help no matter what I try I don’t seem to loose any!

AgedCrone profile image
AgedCrone

Right now I'm wondering if I have put on a bit of weight because I'm not in constant pain. It's not the actual drug, but just that I feel better so I eat more?

On Leflunomide I lost about 2 stone in a couple of months....just had no inclination to eat. As soon as I stopped it I started eating again.

Now on RTX & have gained a few pounds...but I know I have been scoffing when & what I shouldn't & as I'm still size 12 I'll continue unti I can't get the Zips done up!

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