Steroid withdrawal

[Padram]

Hi all, was going through my digital scrapbook, in which I used to note down my feelings, after I was diagnosed with ITP, 4 years back.

Saw this one, when I had tapered my dose from 60 mg and was free from steroids for a while. But withdrawal was even more terrifying.

Oh, for a fix

Not to be on a high

But to maintain a low.

Oh, for a fix

To reduce the tremor

To stop the sweat shower

To clear the foggy brain

To do chores without strain.

Oh, for a fix

To stop the pain

To energy regain

To go for an outing

To go shopping and aimless walking

Oh, for a fix

To end the nightmares

To drive away all fears

To dress with a steady hand

To dance once, to the band

Oh, for a fix,

Not to be on a high

But to maintain a low.

By Low, I mean the immune system should not be on over drive .

Now, I am off steroids. But can NEVER FORGET THOSE DAYS.

[Nsmith13]

Yes I'm just abt to start my withdrawal not looking forward to it I've done loads last couple of weeks and now the party's over for a while .

[Paulajolo]

It's horrendous I'm still trying to get off steroids stuck on 5mg prednisolone st the minute too much pain to go lower.

Seeing rhumy on Monday.

[lornaisobel]

me to I love steriods - I also 'come down' off them - Ive just had a steroid injection and feel amazing - might go and climb Everest today !! I can never understand why I cant be on a low dose all the time ?? Love your poem I will show it to my nurse xx

[Padram in reply to lornaisobel]

😊 Hi lornaisobel, you hit the nail on the head ! Climb Everest, indeed !

[Sandydemop in reply to lornaisobel]

Me three. I was on oral steroids for 10 days. the 9th day I started to feel better, then great. I thought it would last for a long time but unfortunately It didn't last even a month. I know steroids are too dangerous to take often but I want to know what's in it that's so great but so dangerous? Wish I could take it again already!