Can’t stay awake : Did anyone have trouble staying... - NRAS

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Can’t stay awake

Darnell1970 profile image
11 Replies

Did anyone have trouble staying awake when they were diagnosed with RA I haven’t started treatment yet but I stay so sleepy I can’t hold my head up I will sleep and get up and still be sleepy it’s driving me nuts

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Darnell1970 profile image
Darnell1970
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11 Replies

Definitely, slept 10+ hours a day! It does get better Darnell as drugs kick in, honestly, first 4/5 months worse for me. Good luck

hawker955 profile image
hawker955

Are you anaemic. Many of us sufferers of RA have been anaemic and Iwas very drowsy at work. The nurse explained it as a "normal" effect of the anaemia. It improved immediately when the anaemia resolved after I started Humira.

NanaFifi profile image
NanaFifi

Yes, extreme fatigue/tiredness was a big problem for me and something that has remained over the years albeit in a much milder format.

Darnell1970 profile image
Darnell1970

Thanks for all the replies yesterday I slept like 20 hours and was still sleepy and I have always slept like 7 to 8 hours a day

Mmrr profile image
Mmrr

Yes, sleepiness is a feature for many with RA, it does get better as the treatment kicks in.

Ruth12345 profile image
Ruth12345

Same for me slept 3/4 of the 24hour period, but as said it does get less with treatment. However I still get very tired. So take heart things should improve for you with time. Take care.

cpetry profile image
cpetry

Absolutely, it was one of the first things I noticed when it all started... I couldn't help it, I fall asleep every time. Now with the medication, I'm sleeping fewer hours though I still have a lot of fatigue and get tired very easily (I need to rest during the afternoon)... Still improving, little by little. Hope it all goes well for you!!

Amy_Lee profile image
Amy_Lee

I was in great pain hence could not sleep at night therefore very sleepy during the day. I was lucky that my boss was okay for me to sleep during office hours in the office.

Yes I'm cream crackered all the time. However, when I go to bed I don't sleep! Go figure!

Caza profile image
Caza

Yes, before I started taking the meds & before they kicked in I had never been so tired in all my life. I went from having a full time job four children an unpaying lodger (don’t ask 🙄) husband big house & two dogs & a very hectic but happy social life to RD & not being up to any of it. It does get better but I now have to pace myself. When I think back though I’d feel tired but I could pick myself up but when your tired through RD there really nothing you can do it goes beyond tiredness which friends/family don’t really get it do they.

Neverending63 profile image
Neverending63

I am constantly tired no fatigued is a better word. I am fighting of sleeping at the moment as I’m sure I would fall asleep if I was just watching television. I’m finding by 11am I have to constantly get up and walk around or I’m likely to doze off at my desk. It is starting to get me down now and affect my work. Does the fatigue ever go 🤷‍♀️

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