New biologic: Hi everyone .hope you are all keeping... - NRAS

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New biologic

keeta profile image
17 Replies

Hi everyone .hope you are all keeping warm and resting.

Does anyone know anything about a new drug Olumiant Baricitinib .

Just had my benepali injections changed because of constant flares.to this in tablet form.

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keeta profile image
keeta
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17 Replies
Hessie5 profile image
Hessie5

Hi Keeta - hope this message finds all well for you. I am probably not much help but interested to know more about your Benepali injections, were you on just the injection as I am beginning to think it is wearing off for me. My Rheumy wants me to combine it with mtx but I hoping to keep it single treatment. Did it work at first then flares cane back ?

keeta profile image
keeta in reply toHessie5

Hi love took it with sulfz .didn.t wirk for me from begining .constant flares. But it has worked for lots of people .only started it last summer.

Hope it works for you love .once i.m on this new drug i.ll let you know hiwi do

Keep warm .kathy x

Hessie5 profile image
Hessie5 in reply tokeeta

Please do, hope it works out for you. Stay positive and you shall be fine. Best wishes. Hessie

Nsmith13 profile image
Nsmith13 in reply toHessie5

I've been on it for a couple of months with mtx, and noooooo it not duin anything got to have steroids again I fed up, my ra nurse said just stick with for a couple of more weeks an then they will change it I hope !!!!!!💇

SnooW profile image
SnooW

Just been offered this to choose from with Toci, Humira and Enbrel. I discounted this one because I thought some of the possible side effects might play havoc with my IBS. I wanted injections too, so another reason for not choosing Olumiant. It's quite a new drug, I think, and not many under my rheumy have tried it yet so that also made me a bit reluctant as I would have been a bit if a guinea pig! However, have heard one or two stories that it has suited people well, and one lady, I think on here, was very enthusiastic about it. So go into it with an open mind and I really hope it is the one for you.

keeta profile image
keeta in reply toSnooW

Thank you for your answer .take care x

linziej profile image
linziej

Hi Keeta

I have been on this drug since beginning of October. It’s not classed as a biologic but a JAK inhibitor. Very easy to take and no side effects. Now gets delivered to my home as I got it on an early release programme.

Been used in Europe for a good few years.

Unfortunately after an intital good start it doesn’t seem to be working for me.

I am 40 years old and have had difficult to treat RA since I was 22.

My RA is quite aggressive and different to how many others are so that does not mean it won’t work for you.

I have know several people with difficult to treat RA to have a great outcome on this.

Back to consultant I. 2 weeks so will find out what’s happening next.

If you want to ask anything else about biologics as I have tried a good few your very welcome.

Good Luck.

keeta profile image
keeta in reply tolinziej

Thank you so much for the info.

So sorry it did not work for you .did it effect your stomach .any side effects .take care let me know how you get on .x

moomie profile image
moomie

Hi I have been on this drug since the start of November. Not had biologics but triple therapy dmards had stopped working.

I am still on 25mg injectable mtx and have managed to come off steroids. For me it has been brilliant I noticed a difference in the stiffness in about 10 days. This is the best I have been for 2 years. No side effects as such although I get tired really easily.

I hope it works as well for you as it does for me.

My Nurse said a couple of weeks ago it varies an awful lot. Some people no effect other it helps. I am one of the lucky ones.

In October it was taking 2 plus hours to get moving and had difficulty dressing. Now 45 mins and swelling in my fingers greatly reduced.

Just got a big problem with my knee after a fall. MRI shows a lot of inflammation around the bursa. I thought the drug would have helped this but it hasn't.

Anyway good luck and fingers crossed because I can now 😁

keeta profile image
keeta in reply tomoomie

Thats made me feel so much better .

Out of everything i.ve taken over the years .its only mtx that has helped .but it didn.t like me effected blood .lungs. liver. flares are awful stiff and aching

All day . So need something to make me feel normal again.and a bit of warm sunshine on my old bones .ha ha

Thank you so much for your answer .keep warm kathy x

moomie profile image
moomie in reply tokeeta

I am so pleased I can offer support and hope for good results .

We have had minus 6 this am. Not looking forward to the heating bill xx

Hi Keeta,I'm new here so be gentle with me😂. I don't even know how I got here,as I was reading the Osteoperosis forum. But from what I think I'm finding out is RA and Osteoperosis go hand in hand.

I think I've got this right reading the posts you've received, your on Sulfasalazine,and your not happy with it. Don't know if I'm wrong??

Are you thinking of going on another drug because of your stomach??

The reason I ask is I've been on this drug for 15-16yrs,and I must admit I haven't had many flare ups,so it's done me fine,in that respect. But I do suffer chronic Stomach Pain,so bad its debilitating. I don't really put it down to this drug,but lately I've been sent for lots of blood tests,and I can't work out if it's the Osteoperosis or the RA,playing up.

I have no relationship with my GP,and to get to see my consultant I'll have to be dying. Could you tell me if you suffer with your Stomach .??

keeta profile image
keeta in reply to

Hi lovely .i was on mtx at first .which was really good but .didn.t like me .i was so ill on it .then went on to sulfz which i origionally thought was doing me no good .untill the chemist got my script wrong and i was without it for a while .the aching and stiffness got worsse and my lichen planus came back.was put on benepali injections along with 6 sulfz a day didn.t do anything at all for me .flares were worse .

Yes the sulfz effects my stomach .but to be honest .my stomach is effected by most things .brufen .zapain .even my iron tablets .but omeorazole helps .

I think the way i look at it is what is the best of 2 evils .

Just to feel a bit better some time .

Hope this helps love

And welcome to our mad family .gentle hugs x kathy x

Lena2672 profile image
Lena2672 in reply to

Hi Gemini71

Have they looked for any GI issues, colonoscopy, have you had any surgeries in your abdomen, do you take folic acid?

in reply toLena2672

Hi Lena,As far as GI issues I think I've had every test out there including a Colonoscopy ,I've been from one end of the country to the other,to see Gastroenterologist ,nutritionist,you name I've done it. Last year I even had a nerve block. Nothing at all helps not even medication.

I had my gall bladder out about 14yrs ago. And I am on folic acid.

Like Keeta everything upsets my stomach,from the minute I wake up,then gradually gets worse through the day.

Hessie5 profile image
Hessie5

Hi Keeta - looks like I am following the same route as you as now I am the Bari tablets. The injections didn’t work frustratingly. Here’s hoping. If these don’t work I shan’t bother and go nature’s way if I can. Let me know how you are getting on. Take care Hessie

keeta profile image
keeta in reply toHessie5

Hi Hessie. Touch wood it seems to be working for me.

I had to go off it for 2 weeks because of an infection. And the pain and swelling started straight away .back on it now and most is calming down again.

It doesn.t completely take all the pain and swelling away .but i can live with this .its the best i.ve been for a long while.

Good luck with it lovely.

I hope you find it as good as i do .

Keep smiling .gentle hugs.kathy xx

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