Im due to see my Rhuemy doctor (not my nurse) on 16th and as I said in my last post I have taken the decision to come off MTX due to 7 months of feeling really unwell and having no quality of life. Even although the drug worked for my RA it had an adverse effect on the rest of me. I have been off MTX for 2 weeks today, as suggested by my Rhuemy nurse, and my quality of life has massively improved so I know for sure im doing the right thing. Although I now have a bad flare on my left hand and that pain is something I dont want to suffer through my body ever again.
Im really anxious about starting new drugs incase the horrid side effects return. Can anyone help me with alternative drugs they have that work for the condition with little or no side effects? Big ask I know, but surely we shouldnt have to comprimise our quality of life to be pain free.
My life as a newly wed since being on MTX has been hell. Im even on anti depressants to help with low mood. Feeling sick every day, weight loss due to no appetite, locking myself away from people, lumpy skin and generally feeling bleugh from morning until night everyday is no life and I desperately want mine back.
Thank you all once more for your kind words and support.