Sat dropping Quicker, RA not helping.Mattcass - NRAS

NRAS

37,105 members45,838 posts

Sat dropping Quicker, RA not helping.Mattcass

mattcass profile image
4 Replies

Over the last two or three weeks my Sat's are dropping quicker than normal when I am mobile even short distances, I have done great since my release over two years ago without any issues at all The transplant team have arranged more walking tests for 8th Jan and need to know the results a.s.a.p. Already they have informed me that even being on the active list I will move up to the priority list which hopefully means I will get a few offers for my lung transplant. Until then I have to learn to take it easier than I've been doing. My Rheumatoid Arthritis is the killer for me constant pain 24/7 it drags you down to a level you don't want to be how my body has taken the pain and the times I've said to Fran Darling I cannot take anymore it's not a selfish act that what it does Fran holds me she know where I'm coming from and am no quitter and then I think off all the people who have got me here and that's why I am telling you lovely people out the in similar circumstances. Will keep you updated. Mattcass

Written by
mattcass profile image
mattcass
To view profiles and participate in discussions please or .
Read more about...
4 Replies
sylvi profile image
sylvi

Matt and your darling Fran i so understand exactly what your saying as i am going through something similar(nothing to what your going through Matt darling) You have made it this far darling and its not your time to go yet my sweetie. My love to you both and long may it continue for you both.xxxxx

Caza profile image
Caza

Hi Matt,I often think about you & your family & wonder how your doing. Hang on in there. A friend of mine had a lung transplant in October & she's doing great. Different circumstances, she had polio as a child. Take care x

hatshepsut profile image
hatshepsut

I do know just how you feel, so sorry you are going through such a rough patch. I always think it can be worse at Christmas, when everyone expects to be happy, or is expected to be.

You have managed to get this far, with great courage and tenacity. I'm sure that you will find the resources to complete this last leg after all that effort. Hopefully you will not have to wait much longer, especially if you get priority on the list.

My best wishes to you and Fran for the new year, and I hope that you will get your transplant soon.

Will keep you in my thoughts. Mavis xx

helenlw7 profile image
helenlw7

It’s lovely to hear from you, Matt. You’ve got this far, and I suspect you’re no quitter! Good luck.

Not what you're looking for?

You may also like...

MY SELFISHNESS IS HURTING THE ONES I LOVE THE MOST.MATTCASS

After all the special efforts from Fran and Mark who helped me get back to work I feel my...

FRAN, Armed and Dangerous, Mattcass

Hi All several months back I told everyone that I was changing Rheumies because of his attitude...

Newcastle Here Comes Mattcass.

Well that's me n Fran ready for the off to Newcastle in the morning to the Freemans Transplant...

Living With RA

Hi All, My name is Liam, i am 26 years old and have been living with RA now for 3 years. Why have i...

Hydroxy Not Strong Enough. mattcass

Hi All, I'm 9 weeks into the Hydroxy course it says it can take up to 12 weeks well up till now the...