Hi everyone I have RA had it for 10 + years now anyway I also have a rare illness called Castleman’s disease it affects my ligaments and tendons from neck down and my lymph glands , RA docs are at Witt ends they put me on various meds including methotrexate sulfalalazine but they have no effect on inflammation or pain (which is increasing ) so now RA CONSULTANT has referred me to haematology on Monday morning I’m sooooooo scared what if they can’t help ? What if they think I’m a fake ? What pointers can you guys suggest to make my appointment go ok ??? Does anyone feel that meds ain’t working and your getting worse. ???
Thanks for your help