20 mg steroids very low

[Phoo2]

And not happy!!! Had to increase dose as injections not working (again!) and was flaring☹️

Last few days I have had the most horrendous side effects - inability to focus, depression, hopelessness, feeling literally ‘ all over the place’

Think I will have to refuse dose and cope with flares- I can’t go on like this - I am an emotional unstable wreck ☹️☹️☹️

Anyone else had any experience of this?? Xx

[cheshcat]

I'm so sorry <3

I am still early and have had no relief at all, I'm just getting by.

I hope they can find something that can help you, without that awful side effects.

[helixhelix]

Lucy calls oral steroids the devils tic tacs, and I agree. Turn me into an emotional mess, and my OH says that he's going on holiday the next time I take them. Strangely the steroid injections do 't have the same effect. Have you been offered these as a choice?

[Phoo2]

Thanks for sharing - I literally thought I was going mad at one point yesterday !!!!

Steroid injections don’t do anything to me unfortunately ...

Please please please could others share their experiences of steroids so I know I am definitely not going mad!!!!!!! Xxx