I have just returned from an appt with the rheumatology podiatrist as I have been to a couple of appts over the last year for orthotic insoles. I am still digesting her words and would like opinions from others in similar situations. I struggle on a daily basis due to the above conditions. My RA is controlled to an extent by biologics and while my rheumatologist thinks most of my pain is attributed more to fybromyalgia, he acknowledges there is still underlying inflammation and when I’m scanned this is evident. I am not convinced it is solely down to fibromyalgia as the pain is actually in my joints and not surrounding areas? Also my blood crp/esr levels are within the normal ranges since biologics even when I feel terrible but can come up with really high levels when I’m actually feeling better and not flaring.
The podiatrist has minimised everything, she told me my ra is only low grade 1 inflammation so pretty irrelevant. (I have been on biological drugs for the last 7 years and am on gabapentin and cocodamol) I don’t take these drugs because I’m bored! I informed her I had pretty constant metatarsal pain, which an independent specialist attributed to my RA, she said she could see no inflammation today and that my problems were all my fibromyalgia. She said the only way I can get better is to self help and that I should go on the 5 and 2 diet, foot exercises and do Pilates! If I do this then I will be tired from the exercise, will consequently sleep all night then everything will be wonderful! And In time I may even be able to run a few miles??? She said Stomach fat puts added pressure on the joints etc which is causing the oedema in my ankles and pain, so only I can change it??? She said most people think they can take a pill and make it all better. I informed her that was garbage, I only take the drugs I need to manage and constantly try to make myself as well as I can be. Who would really opt to stay in a situation of Ill Health through choice! I’m a size14, although I could do with losing some weight I’m not obese, if I didn’t have difficulties I wouldn’t be attending these appointments. I do the exercises set by my physio, swim as much as I can 2x weekly, eat a gluten free and dairy free diet, practice mindfulness and visualisation techniques daily & participate in good sleep hygiene. I’m stunned that a health professional adopts this attitude, I’m doing my best to function to the best of my ability. I hate this illness, it’s no wonder people make out they’re not as bad as they actually are, especially when you have “professionals” who basically bring you in for an appointment so they can tell you to get on with it! I wish there was some way they could experience what it actually feels like to live with these illnesses 🙈