New here!: Hey everyone! I am a newbie here and looking... - NRAS

NRAS

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New here!

Technicoloured profile image
10 Replies

Hey everyone!

I am a newbie here and looking to get everyone's experiences and just advice on having and living with RA!

I was diagnosed 5 months ago and I am having a tough time adjusting to having this disease and not being able to do as much as I used to be able to. I had to give up work because my hands just wouldn't allow me to carry on.

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Technicoloured
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10 Replies

I am new to all this too. I know how frustrating and hard it is. I'm diagnosed with osteoarthritis and now having symptoms of RA, but tested negative from labs. Hang in there. Maybe we both can get good advice from this site. Kay

Zeet123 profile image
Zeet123 in reply to

Hi I also new to RA. It's such a painful thing. I started on MTX I am on salfasalazine at moment with no relief so am about to start a biologic named Humira it's injection every 2 weeks which I will have to do myself. I hope like crazy it will help I hate salfasalazine it makes my heart thump so hard. I hope we all find something that will help us. Cheers

cuddles64 profile image
cuddles64 in reply toZeet123

Hi, welcome to the site. Is MTX methotrexate by any chance? I too am on that and Sulfasalazine. Luckily the Sulfasalazine doesn't have that effect on my heart but then I do take Sitiglyptin which is a side effect tablet. I just wish that there was a pain killer that could make me pain free some days, not everyday because that wouldn't be a reality but some days it would be good. I am in pain everyday and night so as you can imagine I don't sleep very good. Good luck with your new medication, I do hope it works for you.

Zeet123 profile image
Zeet123 in reply tocuddles64

Yes it's was metheltraxate. I too hope for relief good luck 😊

Technicoloured profile image
Technicoloured in reply toZeet123

I was on MTX tablets, but they did not agree with me. I had such bad side effects and couldn't get out of bed the day after I took them so I have changed to the injection, just had the second dose and so far, no side effects! I hope this injection works for you!

LyndaKenny profile image
LyndaKenny

Welcome. I was diagnosed in May and it affects my hands too. I'm on methotrexate and folic acid. Changed my diet and take supplements and so far so good

Technicoloured profile image
Technicoloured in reply toLyndaKenny

I'm on MTX and Folic acid too. I have to have the injection though as the tablets were giving me bad side effects. How are the side effects for you? I'm glad that yours is going well, I'm still waiting for mine to get to work so I can lead as normal life as possible.

LyndaKenny profile image
LyndaKenny in reply toTechnicoloured

No side effects at all so far thank goodness

stbernhard profile image
stbernhard

Hello and welcome. I was a newbie eight years ago and have gone through the downs and ups of RA, but have been in remission for the last three years. My life is almost as pre-RA. This forum is a good source of information and I also found the NRAS website very useful to find answers to specific questions and their help desk to point me in the right direction if I couldn't find the answers. They also do a New2RA workshop where you are with a group of other people in the same boat as you and get a lot of useful information. All the very best.

Radiogirl profile image
Radiogirl

Welcome! I'm a newbie,too. So much to take in. This site and the sweet folks here are so helpful. Blessings and hugs to you!

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