Hi

[MadMazzy]

Hi everyone

I'm Mary, I'm 56 and live in the East Midlands. I was diagnosed 2 years ago. Currently having a flare 😤

[sylvi]

Hello Mary i live just outside Coventry and i have RA and other health problems.xxxxx

[KayEP]

Hello Mary, Welcome to this wonderful site! I live in France at the moment, but come home to Coventry regularly, to see my Dad. So sorry you're having a flare, hope your docs are able to help, what meds are you on?

[MadMazzy in reply to KayEP]

Hi KayEP, thanks for your reply. I'm on 400mg hydroxy and 25mg methoject. I also have sjogrens, APS, IBS and Raynauds. I've been doing really well recently until last Saturday 😤. Hope you are keeping well 😃

[Zip1]

Hi, welcome to our group, I'm in the East Midlands too!

[Jacki08]

Hi Mary--- I live in Lancashire and have RD and secondary sjorgrens. Like you I am also having a massive flare atm. 😣. Hope you come out of yours soon 😊

[MadMazzy in reply to Jacki08]

Thanks Jacki, hope yours eases soon too 🤞

[determined4321 in reply to Jacki08]

What do u do when you have a flare? Are other medications added to your regimen?

[MadMazzy in reply to determined4321]

GP didn't want to give me steroids, but I have previously been prescribed these.

[Blythegirl]

Welcome from Orland Park IL USA. (Just outside of Chicago) I was diagnosed with RA 7 months ago. I'm on methotrexate and Humira. After only 2 weeks on Humira I've had 2 low pain days out of 16. Im feeling encouraged! Im glad you joined this group- people are very supportive.😊

[Jacki08]

I am very lucky in as much as the nurses at the clinic I attend are brilliant. I rang them on Monday when my body had been swollen all weekend and they said they would see me the next day. I had a steroid injection- it's not kicked in yet but they always take at least a week to work for me. I've never had a flare like this before-- 😣

[MadMazzy in reply to Jacki08]

Hi Jacki08

I phoned nurses on Thursday, they got back to me yesterday, and are seeing me next week at clinic. It's good to know that they are there 😃

I hope you are feeling better soon x

[RMarie86]

Hi Mary,

I'm really sorry to hear that you are having a flare-up. I know that feeling all too well- it's frustrating particularly when you are trying to sort out your medication. I had a flare-up last week and I think it was the stress with the last week of term that set me off. I find that ice-packs on my hands in the morning help a little as they seem to be an area which get affected the most at the moment. How frustrating that your GP didn't want to give you steroids. I was prescribed prednisolone and they have really helped make my flare-up manageable. Did they given you a reason you couldn't be prescribed these again? Could you perhaps see a different GP at the practice?

Rachael

x

[MadMazzy in reply to RMarie86]

Hi Rachael,

Thank you for replying. My hands are not too bad as I wear compression gloves in bed, I also wear wrist supports in the daytime. My meds are pretty sorted and I haven't had a flare since April. I had never seen that doc before. He seemed to be following a template for my ra review, and appeared to dismiss anything that wasn't relevant to it. I'll go back to one of my regular docs this week, if I can get an appointment.

Take care

Mary

[MadMazzy in reply to RMarie86]

Hi RMarie,

Thanks for your reply.

My symptoms have worsened as the week has progressed! Bloods came back last week with low white cells. I rang rheumy nurse on Thursday, as I'm feeling so awful, they called me yesterday, and are giving me an appointment at clinic next week, so hopefully they'll sort me out 🤞

Best wishes

Mary

[RMarie86 in reply to MadMazzy]

I'm glad they're sorting it out quickly. Take your time at clinic- I try to go with a list of questions. Fingers crossed they're able to help you out.

Xx

[MadMazzy in reply to RMarie86]

Thanks. I take photos too 😊 xx

[RMarie86 in reply to MadMazzy]

Brilliant idea

X

[bella-bailey]

Hiya Madmazzy , I live in Cleveland UK welcome,sorry about your flareup,hope it eases soon I'm unfortunate that I can't take steroids for my flareups as they affect my Bipolar so for me its ice packs and heat wraps and a lot of misery but I try to keep as much uplifted as I can for my family's sake x