Anyone under UCLH Rheumatology dept?

[michb90]

Good evening to you all!

Been a coulple of months since my last post re husband and his RA but things are still no better 😔

His last appt with the rheumatology resulted in him being put on the highest dose of MTX. If this still doesn't help they'll be adding Sulfasalazine.

Just being doing some research on rheumatology departments and was wondering if anyone is under UCLH?

I just feel like we've spent so long messing around with getting meds right (and failing miserably...literally) and controlling the disease (we're a year and a half down the line with no improvement) that we're looking to see what else we can do. Also his current rheumatology team messed up his appointments and failed to schedule a follow up so it was only when he called to say the pain is unbearable that they realised the error. I'm not one for most in about the NHS, they are massively overstretched but I have to say the experience we've had since diagnosis has been pretty poor.

UCLH seems to have good 'reviews' so was wondering if the OH can be seen there.

[anne999]

Hi I go to UCLH, please free to message me.

[Sweetvoice in reply to anne999]

Hi there, do you still go to UCLH Rheumatology Dept for treatment? I'm thinking of asking GP for transfer there as having problems with another hospital team in North London and I have already waited many years for a diagnosis. Don't think UCLH can be worse but would help to have a view from a patient. Thank you.

[anne999 in reply to Sweetvoice]

Hi, I no longer go to UCLH. I had awful side effects to the treatment they gave me and had to have an Ileostomy. The Consultant i was under said she was to anxious to put me on any treatment !!. So i switched hospitals and now just started going to Addenbrookes in Cambridge. Only had my first appointment. I chose there as they are very much into research.mmA friend goes to UCLH and very happy there.

[Flowersaregreat in reply to Sweetvoice]

I'm at UCLH. Overall I Iike it. When I was first getting diagnosis I saw multiple different doctors though which hated. Now I always see the same one there which feels much better

[Sweetvoice in reply to Flowersaregreat]

Thanks for your reply. It's good to hear you're satisfied with the hospital. I have asked GP for transfer to UCLH as dealing with current hospital is almost as bad as dealing with the condition.Do you have arthritis?

[Flowersaregreat in reply to Sweetvoice]

Yes I have rheumatoid arthritis and various other health conditions

[Sweetvoice in reply to anne999]

Thank you so much for your very prompt reply. Sorry to hear you have had so many problems. I hope Addenbrookes will be able to help you.I have been to UCLH for other minor issues and everyone has been excellent . It's useful to know your friend is satisfied

Good luck for the future.