Hydroxycloroquine

Hi guys☺️

So my name is Laura and I have had rhuematoid arthritis since I was 8, i am on many medications such as methotrexate, folic acid, omeprazole, bisoprolol, and also naproxen.

I am now 24 and the Arthur as I call it😂seems to only be getting worse for me as I get older which is so frustrating.... but went to see my doctor to talk about all of this and got told there was another medication I could try and it was hydroxyclorquine.

And so far so good honestly have no bad words to say about this drug, really good and effective I have the odd little pain here and there but nothing like before 👌🏻

Would like to know how everyone else finds these and your experiences? Also has made me loose appetite too which isn't a bad thing as previous medication was making me put on weight so finally might go down a size in trousers 😂 yay one plus side I guess.

Hope to hear from you all soon 💋

11 Replies

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  • Oh gosh, you're around the same age as my children. You've had RA since you where 8 years old? Sorry to hear this. I look forewards to hearing your advice on managing this dreaded disease.

    I've been on mtx 20 mg, folic acid 5mg, sulfasalazine 2000mg and hydroxychloroquine 200 mg. I found the hydroxychloroquine gave me the worst side effects. Thank God after a week or 2 my tummy settled down.

    My RA seems to be subsiding at the moment. My rheumy has told me not to put the horse before the cart.

  • Thank you for replying ☺️ yes well it's been difficult but you learn to deal with it. And sorry to hear you didn't get on well with it xx

  • Yes, the human spirit to survive and carry on is amazing. I hope your RA settles down and you live a painfree long happy life. I don't think RA is going to stop you from living your dreams. :)

    All the best to you

    Sue

  • That's amazing I have lost half a stone so doing well it's really good and the joint pain is under control xx

  • Laura, I am amazed you were on much stronger meds and now on hydroxychloroquine after all those years. It's my understanding hydroxychloroquine has the least side effects than the other meds. I myself was diagnosed for RA almost three years now and I have been on hydroxychloroquine since. It has worked well for me and I have not had any real side effects. I hope it continues to work for you and you are able to enjoy your young life.

    Esther

  • I too take hydroxy along with mtx and i have found it succesful as well.xxxxx

  • Hi Laura,

    I was dx age 6, now 52, and take HCQ with Metoject and Etoricoxib. I was told HCQ is one of the milder DMARDS but works well in combination with other DMARDS and MTX. I take Prednisolone too, but find I don't put weight on either, but thought it might be MTX reducing my appetite. Hope it works well for you.

  • Hydroxychloroquine can make you more sensitive to the sun. So until you find out how you react, use suncreens with high SPF. I am heading to Tenerife next week and will pack SPF 50 and 30 suncream. I will still come back with a tan.

  • I am on this and it improved me great.wish he had given me it in first place instead of trial and error on so many others. Only bad thing is my conditionhas now deteriorated as had to reduce another one I am on.hey ho

  • I was diagnosed w RA at age 62. The RA dr said I was kind of old to be getting it So late in life. I am on hydroxy, mtx and humira. Hydroxy seems to be the one that works best. I don't know what the mtx does nor humira? If I stop taking these 2 I notice no changes. If I stop the hydroxy I start getting joint pain.

    The sun sensitivity only occured when I first started taking the hydroxy even though I wear sun screen. I play tennis in the sun now and don't notice any sensitivity any more.

  • Hi Laura - I am so sorry that you are going through this, and bless your heart for going through it for so long... That is really good news, and we are happy for you for that. And yeah, getting into the skinny jeans can be awesome!

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