FIBROMYALGIA

[jaqi1]

Hi all I found out today why I'm in pain even though my bloods are good. I got told I've got FIBROMYALGIA I don't really understand it. Has anyone else got this

[sylvi]

I not only have RA i also have fibro and cfs. With me its the fatigue that i suffer from most of all,also the pain is widespread throughout my body. Somedays it could be in my shoulder next it could be somewhere else.xxx

[Em13]

I don't know, but I suspect that is what my constant aching is too as it is not my joints that ache. Across the tops of my shoulders, above my elbows and my collar bone are the usual places, but it is also more diffuse. I have given up on pain killers as they don't help and cause other problems. Neither Hydroxy nor Sulfasalazine have made any difference to the aches, and again they bring unwanted side effects. As depo shots didn't work either, I think I must have the "wrong kind" of pain somehow.

I thought my GPs would think that having a diagnosis of RD is enough, and that I was being greedy or hypochondriacal (not sure that is a word!) in looking for an additional diagnosis.

[Philip in reply to Em13]

Hi Em, you would need to get a diagnosis of Fibro because it can be dangerous to self diagnose, I think we all do from time to time and that way you could get the proper Medes to treat it. And your right it does hurt lol

[Riedenise]

I too have Fibromyalgia along with Ra,OA,secondary Sjogrens. I agree with Sylvi the fatigue is certainly tripled since having fibro. The pain is in my muscles, tendons etc. There are trigger points all over your body. Which is one of the tests done, you may not know you have tenderness until they are pressed. The problems I have overlap each other, ie: Pain, fatigue. Its hard to know what can be causing my symptoms. Your Rheumatologist will manage both Ra and Fibro. I belong to the Fibro group here on HU too. A lot of help, support and advice. Take care lovely.

[Philip]

Lots and lots of us on here suffer it along side our RA its to do with your muscles and fibres, hurts like hell and until they find a cure there's no getting rid, unfortunately but you can control it by doing gentle stretching exercise daily, it can also make you confused at times or scatter brained.

Don't over do your self because you will pay for it the next day lol, so if it hurts don't do it, there was some talk a while ago that Fibro actually starts in the hands but no more has been said. Also with fibromyalgia you will find times when painkillers don't seem to work and that because Fibro is 50% in your head, all sufferers lol not just you,lol, anyway the times when the painkillers don't seem to work try and find something to distract your mind liverly music and not the ( hang your self to) lol, that's when your muscles are sending the wrong signal to your brain, saying ouch I hurt, sort of thing lol, when the tablets do work then you know it's physical, I hope you can now rest your mind, there is a national charity at fmaukoffice.org.uk

Best of luck and I hope it's only mild, gentle hugs to all of us who suffer this.

Philip

[Simba1992]

Very good results with LDN. A nontoxic treatment option for FM that lots of research going on. ldnresearchtrust.org😊

[Jules40]

Hi

I got diagnosed with this by a consultant last week, within minutes. Took blood and x rays and said physio and a exercise programme, not heard anything since