What the hell, only live once!: So what I have RA it is... - NRAS

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What the hell, only live once!

medway-lady profile image
16 Replies

So what I have RA it is in remission and I'm not getting any younger. So I'm not putting off life any longer. I've lost weight and saw a super dress in Monsoon last week, it is on my wish list no longer, but in the wardrobe. So a happy day, new short hair in the newly fashionable grey, lunch out the eyebrows and nails done, and now the feet are up as a bit fatigued but a really nice day. To morrow I'm going to bottle the Damson Gin I made earlier in the year for presents and I'm feeling that this Christmas will be the best for a few years. I hope all yours will be too, its been a rollercoaster of journey with the RA but now on the straight and long may it continue. LEF has changed my life and thank goodness for that.

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medway-lady
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16 Replies
Kb5417 profile image
Kb5417

Good on you xx

Were a hardy lot and take what you can from life x

Enjoy the dress and the gin 😘

Gigi71 profile image
Gigi71

Wonderful positive news, enjoy and a great and Happy Christmas to you.

Martinilady profile image
Martinilady

Wow super duper you. Go lady Go. Really enjoyed reading your post. Picked me up - even tho Im reading it at 5.30am. ( cant get bk to sleep). Well you are going to have a very Merry Christmas. Good luck and long may it last. X

That's wonderful so uplifting thanks for sharing

gwynedd profile image
gwynedd

I love your positive attitude.

It's something we can all learn from! ☺

Marykate7 profile image
Marykate7

Fantastic, you sound so positive, good for you. May I ask what is LEF?

Kathy

medway-lady profile image
medway-lady in reply to Marykate7

Leflodamide or Arava as its got on the bottle. Thats it sAmerican name.

Ali_H profile image
Ali_H

Thanks for sharing... its good to read an uplifting post. Sloe Gin.... mmmmm! It's years since I've made that - may have to put that right next season.

Enjoy

Ali

stbernhard profile image
stbernhard

So pleased for you. Sometimes it's just what we need. Life's not exactly spoiling us most of the time, so we have to do that ourselves now and then. Have a lovely time.

Tillie20 profile image
Tillie20

I could not agree with you more I have been pain free for 1 year just aching when I get up from bed or chair decided to do something about it I have lost 1 stone and hope to lose another which helps with the aching walk almost a mile everyday to keep fit and feel so much better waiting to buy new clothes when the other stone goes but best to live life to the full while you can x

marie66 profile image
marie66

Such a positive post! Thank you M x

Congratulations! That is wonderful news, and our fingers crossed for it to last the rest of your life!

popsmith1874 profile image
popsmith1874

Well done long may it continue and enjoy

jacqui_9 profile image
jacqui_9

Love your positive post. I've been on LEF for 6 months now and I too feel great and am in remission, but I'm worried about my hair as it is getting very thin, do you know if this will settle down and stop falling out? I don't want to change this drug as it is working really well.

medway-lady profile image
medway-lady

I'm sorry but this has not happened to me, my hair fell out in handfull on MTX, but LEF has not affected it. I'd ask your consultant or RA nurse. Hope it does settle down though as for me my hair is so important. I did get mine cut short on the MTX to try to relieve the stress on it but it didn't work.

CloudTreeDrive13 profile image
CloudTreeDrive13

I am happy for you. Well done with the weight loss. Pampering yourself is good, i should take a leaf out of your book. Enjoy wearing your dress and remain on "a high", You sure have put a smile on my face. Take care and thank you xxxx

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