Well it has been a long, exhausting, very painful, depressing and frustrating few weeks for me but there it is, that faint glimmer of light at the end of that long, long tunnel.
After over two weeks I'm almost pain free, energy resumed and a bit of wanting to live again. Wanting to vere outside to see what's happened since I last popped my head over the parapet. All thanks of course due to copious amounts of drugs......I just love my drugs. I've had just 1 flare that was worse but never one that lasted as long. It's all been about finding just the right dosage for right now......story of our liv s isn't it?
I'm back on the dreaded Prednisolone but on only 5mg.....for now. Even smaller doses, such as 7.5mg have me swinging from the ceiling lights! They do kill the pain but I would need to be tethered to bolts cemented to the ground.....I'm not joking! Of course these too soon loose their potency and have to be increased. I'm still on Gabapentin too but reduced to 300mg X 3 per day. I'm also on paracetamol 1,000 X 3 per day. So far this seems to be doing what was needed, early days though and I know it.
Im off on my cruise on Thursday and at last I'm beginning to actually look forward to it....might even get some packing done. If the drug regime I'm on at present last until the end of September I'll be very grateful as on the 26 I start my 'gold' injections. I have a terrible history with regards to DMARDS and Bio's.......'gold' is my last option. If it doesn't work I'd say I'll be back on Prednisolone for the foreseeable future.
But that's all in the future. The lethargy is gone, as is the pain and I'm taking the spare pillow off the sofa today to put it back on the bed where it belongs and the Dyson will be out to get all the dog hairs that have gathered in balls in every corner of this bungalow. The line is full of cloths drying in the late summer sunshine, my border beds (all done when I was in my spring bout of steroid induced mania) are in their last glorious flush of colour and all is looking well in my world again, thank goodness......it has been a long painful slog but I've survived, again. All done with more than a little help from my friends here, thank you soooooo very much. XX
PS I'll let you know how I managed on my cruise when I get home. XX