What now.: I have sero negative ra but as I wrote I had... - NRAS

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What now.

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I have sero negative ra but as I wrote I had 3 lots meds which affected my liver I been put on prednisolone at first 20mg which my eyes and head felt like they was going to explode so told to cut to 10 mg rem nurse see me said stay on that gave me a booster of steriod injection as well will see my consultant in march and if after more blood test my liver settles I will be put on hydroxychorquine but nothing seems give me any help I feel low I put on weight can't excise like I use to or go for long walks my job is in jeperdy as I work for NHS and I have been so unwell I have not been work ,has anyone got any idea's how to cope in 57 feeling like I am 107. Sorry to sound so fed up .well let's hope we all get some good out of our meds .thanks for reading. Shazza.

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oldtimer profile image
oldtimer

Sorry to hear you're having such a difficult time. Unfortunately it does take time to sort out the best treatments for each individual especially if they have affected your liver. Look after your liver (no alcohol!) in the meantime. Find the dose of steroids that helps your condition while they look for the right treatment for you and keep pressing them for a solution, politely and persistently. A lot of us on here have had struggles so we can understand, so feel free to vent how you feel, but look when you can for the positives in life - that bit of help someone gave you, the smile you got back from the pharmacist, whatever it is that makes life seem a little bit less grey.

in reply to oldtimer

Thank you I glad I found this site as we look good to some people but it how we suffer inwardly be safe thank you can good to vent out our frustrations.

Smiler53 profile image
Smiler53

Hi Shazza, Sorry to hear that you are so low at the moment. I think it gets us all like that at times. This is a great site to be able to get it off your chest and talk to others who know how you feel. So vent away!

I'm sorry that I don't have any answers for you. Hang on in there, it just takes time to get the medication right unfortunately. Hugs X

ps. Love your rabbit, I have had four rabbits, my last one being a small Lion Head who was a house rabbit, he was such a lovely kind rabbit - still miss him.

in reply to Smiler53

Thanks yes he was my indoor rabbit had him for eight years just like a babe.x I am glad I found site yes I know it takes a while to sort but when I had pain years ago in joints I just got told its wear and tear and of course in hospital environment we had no hoist to help us with patients so my body has taken its toll.x thank you again happy new year and let's hope we all get relief from our meds.x

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