Hi it's so good to know I'm not alone after 30 years ,its nice to know I can moan about the pain to people who really understand and I won't worry the family .thank you
So pleased: Hi it's so good to know I'm not alone after... - NRAS
So pleased
Don't worry we all like a moan saves us moaning to our loved ones
Welcome! I have found this to be the guiltless zone in my life. I can talk about whatever I need to without worrying about whether or not it sounds like moaning. I don't know what I'd do without this place and these people
Bats
You just moan away luv, thats what we're here for. XX
Welcome! I'm also a newby, and have found this site and the people on it to be wonderful! I also hate to "moan" especially since the only one I have to listen to me is my husband, and I hate to do that to him. I can moan long-distance to my sister who has Lupus because she understands, but I try to stay as positive as I can with her so as to keep both our spirits up. And here you can just talk about/ask whatever is on your mind and there's usually always someone that will identify with what you are saying.
Welcome DC56. It is a wonderful place to be in contact with people who knows how it is, just to feel free to talk ¬ be judged or just have a rant! I hope you enjoy being here but I find I still need to keep talking to my closest family & friends otherwise how are they to know why you don't always want to do just nothing at times lol!
What a shame you've not found us sooner, 30 years is a long time, I do hope you can share your experiences particularly to those newly diagnosed.