Well, the blood work is back, and everything including the genetic marker test is negative. This is good, but it's also frustrating. She's a GREAT doctor, but she's unwilling to make any sort of diagnosis until there's some kind of direction she can lean towards. She wants me to see a dermatologist next to potentially rule out/in Psoriatic arthritis, but that's about all I can do.
I can feel whatever this is changing on a weekly, almost every other day basis. After I finished posting the original post, I began experiencing prolonged periods of stiffness in my left knee, followed the next week by the sensation of burning. The burning is pretty much around the entire knee cap, and somewhat extending to the areas around that. Now, the right knee has begun showing similar burning. I've yet to find a trigger, however standing too long, and sitting with my knees bent in a certain way tend to make it come out more prominently.
To say I'm frustrated and disappointed is an understatement; I was pretty sure I was closing in on something...but Now I'm back to just guessing and hoping. It feels like whenever I begin to "accept" what's happening, my symptoms worsen a little more in some capacity. It's causing me to relapse on a lot of hard work I've put into my mental health, and probably making this entire situation worse.
I just have to keep myself positive somehow...somehow.
Thanks for listening to me vent. I know my problems are basically insignificant in comparison to a lot of onstart tales, but you folks are basically all to talk to about this right now, and I appreciate the heck out of all of you and how strong you all are.
Last I wrote, it was about how I hadn't been diagnosed yet and struggling to find a doctor. Well, after one terrible rheumatologist and another primary visit, I've found a great rhuemy that's right out of college, and knows what to look for. I still have no diagnosis, but we're doing more blood work (this one including a new test for me; checking for a genetic marker, whose name escapes me), and she's promised me that we'll figure out what this is.
She said she's hesitant to say that I'm positive for RA based on how inconsistent my pain/stiffness/etc are, so we're looking into other avenues as well (psioratic arthritis being another culprit). I'm hoping that whatever this is, RA or otherwise, I'm not getting to it too late. This makes 7 months now with symptoms that have been ever so slowly progressing.
Anyone else have similar issues?