I have been diagnosed with adult onset stills disease last December and have been on methertrexate 20 mg injection and previously had steroids 40 mg, steroid injections in joints and a steroid drip before being let loose from hospital. Don't know if anyone can help or as had similar experience since reducing steroids down to 10 mg and starting methertrexate injections have had awful fatigue, joints getting worse, inflamation slowly going back up, brain fog,upset tum and now have started with a sore itchy rash on face which after this week's methertrexate got so bad that went see doctor and said she thinks it's perioral dermititis which she gave me metronidazole gel and said no make up not even moisturiser but gel felt like it was setting my face on fire so haven't dared use any more.
I know you might think this sounds really petty but this really upset me as even though I've been feeling really down and rubbish as like most of you illness came on overnight was working full time, going out, holidays and generally quite a normal 47 year old. Everything came on so sudden handed my notice in was looking forward to starting a new job then 3 days later could hardly walk and ended up in hospital for a month with liver problems, fevers, raised lymph nodes so wernt sure if had lymphoma but luckily was given the all clear but was diagnosed with stills disease. Haven't been able to start new job so have had to go on esa and every few weeks have problems as they keep saying I'm getting paid by new employer, I said I wish I was because that would mean I wouldn't have to go through all the stress of dealing with the benefits and getting myself upset and feel as though nobody believes me.
When I asked could it be the methertrexate she wasn't sure so said to stop next injection as see consultant next week, but said if it is perioral dermititis or muzzle rash as it's known, which says it all said that you shouldn't wear make up again as it makes it worse, and it's now itching and burning up that much that feel like putting head in freezer to cool it down.
Have any of you had similar experiences and do you know if could be the methertrexate or coming down on steroids, bad enough with joints and everything else but I like to try and make myself look half decent and have always had sensitive skin but have always tried to look after it and look bad enough with the moon face due to steroids and being that hairy was almost mistaken for chewbacca.
If anyone has had similar reaction or knows of anything that will help it would be appreciated. I know methertrexate can make skin sun sensitive and my doctor said to wear a sunblock and I have always worn a fragrance free moisturiser with a sun factor in but now don't what I can use she has also said not to use fluoride toothpaste as this makes it worse so could be a Billy no nashers soon to. If anyone has had anything similar or can suggest anything that would be useful I would be so grateful.