We returned from a weekend away in September - the following day had a phone call saying the Rheumatologist had a cancellation and would I like it. So off I go not really thinking about what was about to happen. Arrive with a couple of minutes to spare and whisked straight into the Rheumatologists office. Lots of questions and examinations - the squeezing the hands thing (i nearly ended up on the ceiling didn't know my hands hurt that much!). I was asked if I would like to join a study of people who have an early diagnosis of RA - agreed to that and was whisked through to the research department and scans done of my hands and feet showing inflammation in both wrists and in the knuckles on my right hand. Lots of blood tests lots more questions and x rays, Found out the nurse has RA and Sjorgens so was able to have a good chat with her.
Finally left the hospital after 6 hours head reeling with information bottom stinging with the steroid injection and the methotrexate shoved in my handbag along with information leaflets about RA and the treatment of it. When I entered the hospital I thought I couldn't possibly have RA.
Last week my medication was upped to 20mg - my hands aren't quite behaving as they should thinking of adding another damard maybe Sulfa or Hydroxy, but on the whole don't feel to bad. Get tired easily but still working full time and have even ridden my motorbike.
From initial GP blood test to seeing the Rheumatologist who is really very good,approachable and human, a little over 4 weeks all with the NHS. I feel very lucky to have had this care so quickly. I still worry about what the future holds, but for now I am well cared for and doing the things I love to do I can't ask for more than that. Hope I haven't wittered on to long but maybe this will help someone see that life can continue almost as it was before.
Oh also Sjorgens has decided to join the Autoimmune party along with Hashimotos!!