NRAS is launching a Juvenile Idiopathic Arthritis (JIA) service - JIA-at-NRAS!

Hi Everyone,

I know there's a few people in the community here who were diagnosed before 16 years or with juvenile idiopathic arthritis (JIA) and thought I'd post about our new service, JIA-at-NRAS, which launches this month.

Our aims will be to raise awareness of JIA, provide information and support to families, campaign at government level to ensure that the needs of families, children and young people affected by JIA are understood and prioritised. We will also be working with health professionals and other charities to ensure we are all striving towards the same goal: ‘a better life for young people living with JIA’.

If you would like to find out more or attend our launch day on Saturday 19th July, please visit nras.org.uk/jia

You can also help (and this is for those with RA too!) by joining our Thunderclap to help raise awareness of the launch and JIA as July is JIA Awareness Month. Please sign up at thunderclap.it/projects/134...

Best wishes,

Ruth Grosart

NRAS Digital Media Coordinator & HU Admin

[elmtree]

I am so happy that work is being carried out to raise awareness of JIA, I was 5 when I was diagnosed and even now at 32 people have still never heard of it and think I'm mad when I tell them I have arthritis. I think more awareness needs to be made for the children who develop JIA and for people who still have it in adulthood. I usually just tell people I have rheumatoid arthritis as it's easier to explain. Thank you for raising awareness of this condition.

[Hidden in reply to elmtree]

Hi elmtree,

Lovely to hear from you! Would you be interested in supporting the JIA project? We want to hear from as many people as possible with the condition to help our research. Please email our JIA Services Manager Maria-Benedicta Edwards on [e-mail] or call 01628 823524.

You are also very welcome to come to the launch! You can sign up to attend at nras.org.uk/events/a0pC0000...

Best wishes,

Ruth Grosart

NRAS Digital Media Coordinator & HU Admin