Sick and tired of being sick and tired..........................

[sylvi]

The title says it all i'm afraid, just want to be painfree is that too much to ask.........xxxxxx

[Hidden]

No it's not to much to ask, and I wish that I could do something for you. The only thing I know that I can do is to continue to pray for you. xxx

[sylvi]

Thank you my darling friend.Just having a bad day.xxxxx

[Kittykatxxxxx]

No it isn't Sylvi and I wish you were. Take care Xx

[mattcass]

Hi Silvi, I'm in the same boat as yourself constant flare ups all round for the last three days, I was that bad last night i told Fran a Lung Infection was all that was missing. Gentle Hugs to you.Love Matt

[sylvi in reply to mattcass]

You don't want that Matt.Hugs back at you.xxx

[Hidden]

I'm with you in this Sylvi, just can't seem to get out of this flare and have zero energy

Hugs,

Cece x

[Caza]

You seem to be having quite a year of it sylvi I so wish you better. X

[sylvi in reply to Caza]

Thank you Caza,i won't be sorry to the year over thats for sure.xxx

[Caza in reply to sylvi]

No I cant imagine that you will be sorry to see it over. Lets just hope 2014 is a much better yr health wise for you x

[Hidden]

Hello

Sadly I wish that could be possible, The medical profession can only suppress it.

If they would prevent it all we would be in a constant coma of medications.

I suppose we all have to be strong,it is all a learning process, with a very strict teacher

All the best, keep a hold

BOB

[sylvi]

Thank you everybody i will come through this,when i don't know,but i will. I wish you all feel brighter.xxx

[miss]

Sylvi sending you a big hug sweetie. Wish a brighter day tomorrow for you xxxx

[sylvi in reply to miss]

Thank you my darling friend.xxx

[jramsey]

As this is my first flare up, this is all coming as a shock to me. I find I'm hating bedtime as I never know what the morning will brinn. Keep your head up. I find great relieve in this group and the support. Although my partner is very understanding it's hard to explain all the symptoms as the change hourly sometimes. This group helps as if reminds me I'm not alone xx

[sylvi in reply to jramsey]

Yes they do change by the hour.I am off the steroids after being on them for years and i wonder if they are why i ache so much,but i don't want to go back on them if i can get out of it.You not alone i can promise you that.xxx

[Someonesmother]

Oh Sylvi sorry to hear you are feeling down. It is a struggle after nearly two years I am hoping that one day I too may be able to actually get some control over the pain. It is frustrating, debilitating and down right exhausting and because we look sort of OK people have no idea. I am sick of hearing my husband say oh she must be Ok she is going to work. No, it is because we will be evicted if I don't. So yes I agree sick to death of feeling like this and I wish I had a magic wand that could make everyone better and pain free. Can you talk to anyone, go out for lunch with a friend or have them come to you if you can't go out and have a picnic in the lounge? Indulge in your favorite food, leisure activity, vice ????

[sylvi in reply to Someonesmother]

I'm not alone at home i have hubby,son,and his wife with me so i am always with someone.I don't have the energy to go very far.I am seeing my rheumy nurse on the 18th so hopefully will give me a jab to help me over christmas. I am decorating the trees today they are up and the lights are on and my dil is going to help me as hubby and daughter are at a military tattoo in birmingham today and tomorrow,i am going to it tomorrow. Thanks for the hugs Allanah.Thanks everyone for your kinds thoughts.Love from me.xxx

[Someonesmother in reply to sylvi]

I am glad you have family around that can give you a hand. I don't think I will get tome to put up the tree this year too busy packing to move on the 20th, the grandkids will be disappointed but that is life. I hope they can give you something that may help. Lots of hugs

[allanah]

Hugs Sylvie xxA

[Shell1967]

Hugs and more hugs sent to you sylv.lots of love as always Michelle xxx

[sylvi in reply to Shell1967]

That is so lovely of you Michelle and thank you very much.xxxxx

[Shell1967]

You are welcome,always think about you xxx

[sylvi in reply to Shell1967]

Your words just hit a chord with me i don't know why,but they are lovely.xxx

[Shell1967]

That's wonderful and hope you manage to enjoy some of the time putting your Christmas tree up and makes you feel a little better.love always xxx

[nellysgran]

Lots of gentle hugs are being sent your way Silvi snap I am full off pain today but hopefully tomorrow will be better for us both xxx

[sylvi in reply to nellysgran]

Lets hope so.xxx

[krysia]

this site is such a comfort to me as i have no one to compere sympton's with my husband is understanding about the ache's and pain's but isnt aware some of the time how awful i feel on my bad day's, than's every one xx