My Rheumatology Dr has no idea of what I'm going through,he says I am in the middle of Rheumatoid or Lupus,I am classed as Autoimmune HELP.

[Jennysteve]

I am full of pain but because they cannot say what it is I feel I'm not getting the help, I am on Methotrexate top dose and injection and that One which begins with Hy. My Dr says I have chronic auto immune pain. Help what do I do.

[Hidden]

Hi Jenny,

If you have a rheumatology helpline at your hospital then give them a call and say that you need urgent help with getting your pain under control. If they can't see you today then insist on an emergency appt at your gp surgery. It sounds like you need a combination of steroids and more effective pain relief medicine - but they are best placed to assess this. If you're feeling desperate and need some support then phone the NRAS Helpline. You're not alone with this and there are lots of people on here who have been or are in a similar situation. Keeping posting and let us know how you get on:-}

Cece x

[Victoria-NRAS Partner Moderator NRAS]

Hi Jenny

Really sorry to hear about the pain you're experiencing. As Cece says, if you have a rheumatology nurse helpline you can call they may be able to help. Your GP can also potentially help with general guidance on pain management, regardless of what condition you have.

You might also find our pain article helpful:

nras.org.uk/about_rheumatoi...

Unfortunately, as there can be a large cross over in terms of symptoms and treatments people don't always get a very firm diagnosis. This can be very frustrating, but hopefully the treatment you are on could improve your condition whether it's lupus, RA or even a combination of the two!

I really hope that you are able to get some help with your pain control soon.

Kind regards

Victoria

(NRAS Helpline)

[Jennysteve in reply to Victoria-NRAS]

Thank you for the information I have read quite a bit of it with some items of use. I am allergic to Aspin so a lot of the medications are of no use, I also have cut nerves in one of my feet after operation went wrong so mobility is also affected. I suppose that I'm just going to have to get used to it. I could go on and on about all my ailments but thank you for trying to help. I will read all the literature again. Many thanks. JennyT

[Jennysteve]

Thank you Cece and Victoria, I have a Rheumatology Nurse but I say this is not working out, My Dr says to try and not have too many Pain killers. Before I go on I am on a cocktail of drugs for one thing or another, I have lots of allergy's to some things, I am on Co-Dydramol, Hydroxychloroquine, Noratriptaline, and Methatrexate. that is just for the Rheumatology then there lots of different Meds. I think I should not say too much to my Rheumy Dr as I'm afraid he will stop my Methatrexate.Thank you anyway I will keep this what you have said in mind.

[oldtimer]

The rheumy won't stop your methotrexate - that's preventive for the inflammation.

You need something else to control the pain. Have you had steroids? When i have a flare-up, I'm always offered a steroid jab or an increase in my oral steroid dose.

[Jennysteve]

Thanks Oldtimer,

Unfortunately I cannot have anymore Steroids as my body collects it, I get bruised all over and my skin is getting quite thin, Thanks for the message anyway.

Take care. x