Does anyone get breathless, even when I smoked I was ... - NRAS

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Does anyone get breathless, even when I smoked I was never breathless but just lately when walking up hills or stairs I get very breathless

LesleyH profile image
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LesleyH
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11 Replies

Hi. What meds are you on, as sometimes breathlessness can be attributed to your meds. MTX being one.

Carolyn

LesleyH profile image
LesleyH in reply to

I am on 20mg of Methotrexate

in reply to LesleyH

I developed Pneumonitis shortly after starting MTX. If I were you I would get in touch with your Rheumy or Rheumy nurse, just to be on the safe side.

LesleyH profile image
LesleyH in reply to

I will speak to her sapThank you

jeanabelle profile image
jeanabelle

Hello Lesley, in my first year of treatment I found myself a bit breathless. I had a scan done on I have a 'thing' on my heart lung.....they told me the name of it....broncio something....not bronchitis but it sounds similar. When I spoke to my rheumy about it he said it could be related to my smoking days. It didn't stop me from getting on any drugs and I'm now on biologicals. I do sometimes get a bit breathless and a bit of swaying with it but I have to say I haven't had it since I went on my latest drug, abatacept.

Be sure t tell your team about it and they will investigate for you. Try not to worry, I know everyone says that don't they? But it worked out alright for me and it is monitored yearly must to keep an eye on it but it causes me no real bother. All the best to you and keep in contact. XX

LesleyH profile image
LesleyH in reply to jeanabelle

Ok will do I will ask the consultant when I see her next

Dogrose profile image
Dogrose

I get breathless and lately my lungs have been mewing and creaking too, told my rheumy today but he didn't seem that bothered. I'm on MTX and Infliximab. xxx

LesleyH profile image
LesleyH in reply to Dogrose

Am only on MTX am going to ask the Consultant when I see her

earthwitch profile image
earthwitch

A change like this is definitely something that should be reported, so glad you are going to talk to nurse/rheumatologist about it. As others have said sometimes meds can do it, and sometimes it can be something like early signs of inflammatory disease having a more systemic effect. Either way, its good to get advice on it early, even if it turns out to be nothing.

summer32 profile image
summer32

You should contact your rhem team. asap

SlimJacqui profile image
SlimJacqui

Just seen your post, I too got breathless walking up stairs after I stopped smoking, I have been diagnosed with Copd, Chronic Obstruction Pulmonary Disease for which I use inhalers for.

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