Just wanted to bring a great site to everyone's notice again. i highlighted it before but it is worth repeating. It is butyoudontlooksick.com. It was written by a woman who has lupis and it was her way of explaining what it is like having a 'hidden' disease. It is well worth having a look at. Read it and pass it on to family and friends to read......it speaks very well on our behalf.
I should explain that I am zero negative and so I don't have the tell tail swelling that others have but lots of the pain. You would have to look hard to see the deformities that I do have. As I have said before if you saw me sitting in a restaurant you wouldn't think there was a thing wrong with me.....watch me trying to get to my feet and you will see the real me....XXX
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jeanabelle
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I know what you mean! I'm also seronegative so on the whole (until I stand or walk) I don't have the giveaway signs of RA except for very swollen hands
People who know about me having RA always comment on how well I look, and a lot of them have no idea how really awful it is because they usually see me sitting down and don't think about what happens when I'm doing anything else.
In many situations I'm really pleased it's invisible because not everyone has to know there's anything going on with me, it doesn't get in the way and they treat me no differently to anyone else.
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Lots of reading to do, chest x-ray, feet x-ray, blood tests .......
Well...I am on the move and spending lots of money:))))
Can I decide what treatment I have?
karmasutRA
