MZL or CLL diagnosis

[Phs2385]

Hi Everyone - My father's two hematopathologists disagree about diagnosis--one says CLL, the other NMZL. The NIH has denied the request for a pathology review because it is a needlepoint biopsy, and they would not be able to distinguish between CLL and NMZL through the specimen. It is disappointing, but I understand the logic.

As we await an excisional biopsy, I ask for your help. Those with MZL, can you please share with me any of the following:

-Immunophenotype (CD markers) - located on flow cytometry report

-Genetic markers (TP53 mutation? IGHV mutated? 17P deletion?) - located on the molecular report

-Absolute lymphocyte count - located on CBC with differential

-The morphology (look of your cancer cells) - located on the biopsy pathology report

If you prefer, I would love to hear from you through a Private Message; I will absolutely keep your test results private.

Thank you so much for your time and help. I appreciate you.

[Shar0n Volunteer]

In the absence of any response so far to your question, I wonder would it be worth posting it in the CLL Support forum? They have a lot more members than NHL Friends and some people are members on both groups. Here's the link to CLL Support :healthunlocked.com/cllsupport