feeling lucky: I have a friend that... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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feeling lucky

Josie2rulrs profile image
11 Replies

I have a friend that just died of triple negative breast cancer... In one year she was gone...her remission was one month....

This sounds crazy but I almost feel lucky that I was diagnosed with a cancer that seems to be very treatable and with long remission times. I also believe that new treatments are coming to the forefront to totally eradicate this disease soon....

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Josie2rulrs profile image
Josie2rulrs
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11 Replies
laylalulu profile image
laylalulu

I feel you are right, when I was diagnosed two years ago several people said well that's a good cancer to have. I was like whaaat? After reading many positive outcomes with all different NHL cancers and treatment plans I do feel a great deal more understanding of why they said this. Treatments seem to give some good long remissions, new drugs and treatments. However we need to be proactive in our own health plan, eating healthy veggies and get rid of the sugar if your a sugar addict they say cancer thrives on it in our body. Exercise, a hobby or two will keep your mind busy. Good luck

Josie2rulrs profile image
Josie2rulrs in reply tolaylalulu

Yes all correct.

I went to the Lymphma Research forum in nyc in 2015 and spoke to the head guy on Lymphoma (forgot his name) and he told me I can be assured that the new drugs that are coming out in five years will totally eradicate this.....

Told me I will be fine....

jmcobb50 profile image
jmcobb50 in reply tolaylalulu

I like how my primary care physician explained that I had small c rather than big C cancer. All cancers are not created equal and if I have to have one then I feel thankful to have NH follicular lymphoma even though it is not cureable. They are making progress on a cure. In the meantime, live healthy with a lot of plant based vegetables, sleep, exercise and healthy living!

Josie2rulrs profile image
Josie2rulrs in reply tojmcobb50

When my Friends talk about people we know whi have cancer they leave me out of the mix they kind of forget that I got diagnosed with cancer but because I have no illness and no chemo they put me in a different category I'll take being looked at with no cancer

Josie2rulrs profile image
Josie2rulrs in reply tojmcobb50

Yes so true

Sandy_Mouse profile image
Sandy_Mouse

What sub-type of NHL do you have? Did you go through chemo & radiation? What drugs were implemented in your treatment, if any?

Josie2rulrs profile image
Josie2rulrs in reply toSandy_Mouse

Lgfl stage one grade one. One node removed. Watch and wait every 3 months no treatment. Almost 2 years now My doctor tells me that I will be one of the rare ones that never comes back. She is a positive oncologist.

BelindaTupper profile image
BelindaTupper

So very sorry to hear about your friends short remission....it does feel a bit weird, I agree, to feel we got off "lucky" with NHL. I guess like anything in life, it is all relative. Stay positive, I'm convinced that's the key.

Josie2rulrs profile image
Josie2rulrs

I left one oncologist who did not speak to me in a positive way but the doc that I have now is very positive positive and I leave there feeling good not dread

Familye31 profile image
Familye31

Hiya i too lost my friend to triple neg bc last year in a year she was gone with no real remission. Its a terrible relatively unknown Breast cancer but so aggressive. She was only 50. I feel I owe my early diagnosis of follicular NHL to her as it all started just after she died. Life is so cruel and Cancer is so naff ...

Josie2rulrs profile image
Josie2rulrs in reply toFamilye31

Very sad. They ate making so many strides in our disease

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