Misty1963

[Tumour123]

My husband has been diagnosed with brain lymphoma cns. Has anyone got any experience of this.

[Jennchap1]

Yes I have. I was originally diagnosed with NHL (large diffuse B cell) in April 2015 and was in remission after 6 rounds of R-EPOCH. So I didn't expect expect to have relasped so quickly when I experienced unfamiliar debilitating symptoms I was unaware that NHL could travel across the blood brain barrier into the CNS. MRI confirmed diagnosis in June 2016. I had 8 rounds of Rituxin/Methotrexate. Days of testing, scans, etc and I then had 8 days of powerful chemo to wipe out my immune system in preparation for my stem cell transplant which was Nov 4, 2016. I was in the hospital 6 weeks. I have a follow up MRI next week and follow ups, every 3 months. I have to be extremely careful due to a very compromised immune system. I am a 54 year old female, fairly healthy all my life so went into this whole journey strong. I wish you both well as it is a team effort. I couldn't have possibly done it without my husband. Jennifer