I am new here...: I have fNHL... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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I am new here...

CarenR profile image
6 Replies

I have fNHL, diagnosed 2009, w&w until 2013, then Bendamustine/Rituxan, Revlimid and then 2016, R-EPOCH.

I am finishing my final treatment next week!!

Excited to finally be done chemo!

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CarenR profile image
CarenR
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Shar0n profile image
Shar0nVolunteer

Welcome Caren! I am also FNHL patient diagnosed two years ago at age 59 and a volunteer with this community. I am currently on watch & wait. Congratulations on the imminent completion of your treatment. There are other members here who may have been through a similar treatment regime, so please feel free to share your experiences when you are ready. This is a fairly new community but new members are joining every week and I hope you find it a helpful and friendly place to come.

mkpower profile image
mkpower in reply to Shar0n

It has been 6 1/2 years since I did treatment for defused large B cell l also have FNHL.

I am doing really good now, prayer helped me so much and still does l also have a very good support team my family.

I still find I it hard to move past the cancer there is not a day that I don't think about it, but I'm trying.

Good luck and may god bless you.

Marjorie

Shar0n profile image
Shar0nVolunteer in reply to mkpower

Hi Marjorie, I often think that this illness is as much a mental as a physical challenge. It's very encouraging to hear from someone who has come through treatment and is doing well. I wish you and Caren continued good health.

Josie2rulrs profile image
Josie2rulrs in reply to Shar0n

This site is a big help...no one knows how you feel unless they gone through it.

Josie2rulrs profile image
Josie2rulrs

Good for you....hopefully it will be the last....think that it will and it will be.

wmay13241 profile image
wmay13241

Since most fNHL patients progress, you should be researching your next treatment. About 75% of fNHL patients who receive CAR-T have long duration complete remissions. Here is a great blog for fNHL CAR-T patients or those considering CAR-T: fnhlben.wordpress.com/

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