Creatinine increasing

[kidneymom09]

Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from my team. 2.4 is the highest I have ever been. I feel great and believe I am pretty well hydrated. Just nervous.

[kidneymom09]

sorry. the results were 1.17 3 mo ago and 1.24 today

[PeterChao in reply to kidneymom09]

sorry to hear that your numbers are going in the wrong direction. I’m almost 6 years out and my last creatinine result was 1.71, previously it was 1.4.

My baseline is around 1.5. I’m hoping this just a random spike, which I have experienced before. Good luck!

[kidneymom09 in reply to PeterChao]

Was your transplant team concerned? Did they make any changes?

[PeterChao in reply to kidneymom09]

I see them quarterly and they have asked to do another blood test in 6 weeks to determine if it was just an anomaly or if there is a situation. 🤞

[kidneymom09 in reply to PeterChao]

wishing you the best. Thank you

[BraveandBol in reply to kidneymom09]

Going from 1.17 to 1.24 is not significant. I wouldn’t be concerned at all. If it went from 1.7 to 2.4, it would be alarming.

[Jayhawker in reply to kidneymom09]

Thanks for clarifying! NUCH better with the accurate data!

Jayhawker

[KidneyPancreas2010]

I would suggest a retest as I have experienced a fluke in my results due to lab error or whatever..a retest for me made a significant difference. Important to keep drinking your water in a regular basis, I have been advised 3 (16 oz) bottles minimally, 4 preferably. I am 13 years out and my creatinine average is 0.9-1.0. Good Luck, I am sure you will be fine. Sending good health your way!

[kidneymom09 in reply to KidneyPancreas2010]

that is the same amount I drink. I am only 5ft 105lbs thank you for the well wishes

[TaffyTwoshoes27 in reply to KidneyPancreas2010]

My Transplant team said to drink 64 oz of water a day. My Veterinarian told me she drinks 120 oz of water a day! That's a lot!!

[Jayhawker in reply to KidneyPancreas2010]

I’ve got you beat on water requirements: 100 Fl oz is my daily target. I feel like I’ll float away some days…

Jayhawker

[kidneymom09 in reply to Jayhawker]

lol. How do ou not get nauseated?

[Jayhawker in reply to kidneymom09]

I really just continuously sip on water all day long. I have to drink 5 20 Fl oz bottles filled with water. So, drink one by 10am, another by 1pm, another by 4pm, another by 7pm, and the last by 11pm when o go to bed. If I don’t stay on track it’s pretty much impossible to drink enough water before bed.

Jayhawker

[sugabear]

You might want to delete and correct this post. The original numbers you posted are very concerning and would likely result in a biopsy. The actual numbers are not. Please listen to your doctor.

[Betsymydog]

Has your doc Recommended Belaracept infusions? My creatinine has improved since I started them and happy to be totally off tacrolimus.

[Betsymydog in reply to Betsymydog]

Misspelled Belatacept. That is the correct spelling. Here in New York State (Central NY) infusions are used more often than not, research has shown there is much less chance of rejection with infusions 7 years after transplant.

[Tashikat in reply to Betsymydog]

why the infusions vs tacrallomus?

[Ynnep]

Could be a random spike. Keep calm until you hear from your team. Praying for you!

[TaffyTwoshoes27]

I was told Tacrolimus Post-transplant (after a year) shld be 4 - 6. I would do research online if a high Tacro can cause the high Creatinine? I attended a virtual support mtg yesterday and the Guest Speaker was a Nephrologist from Emory University Hosp. I think I remember her saying that over 2.0 was high for Creatinine.

I am 16 mos post-transplant and my Creatinine is .93 and my Tacro is 4.2. My eGFR is 67.

I hate the Prednisone. I'm on 5 mg and have gained 40 lbs.!! I want my Neph to lower it to 2.5 mg.