Does this platform have a wider use? - Kidney Transplant

Kidney Transplant

3,544 members1,966 posts

Does this platform have a wider use?

YorkyinNorfolk profile image
0 Replies

I was just reading how Health Unlocked has benefited so many people during 2022 in SaskiaHU’s blog.

I’m sure many of us, as transplant patients, benefit from the shared information and experiences, but I was wondering if there are any transplant consultants or other medical professional that tap into our experiences on here to help formulate better care?

I know in the UK we have the British Transplant Society which tends to concentrate on the medical side but it often falls to charities (like Kidney Care UK) to advocate for the patients and their experiences, worries, and fears.

One thing that seemed to come out of the Covid 19 pandemic was the acknowledgment that we possibly all need the availability of more mental health support and guidance navigating the world as immunosuppressed patients.

Transplantation, medically, is a modern miracle but acceptance, recovery, and managing your health afterwards often takes a more holistic approach.

No doubt this is different in every country.

Are we being listened to? Are transplant centres sharing their good practices and lessons with other transplant centres nationally and internationally?

Just a thought.

Written by
YorkyinNorfolk profile image
YorkyinNorfolk
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Covid Risk from Travel after Transplant

Covid following kidney transplant & can share their experience with me , Many Thanks

Getting UTI as transplant recipient

Wondering how many transplant recipients get UTI (or more often than before transplant). Never had...

Does anyone have low blood pressure after transplant?

anyone have real low blood pressure after the transplant? Mine was never high to begin with. It is...

Kidney transplant and Oteoporsis

post kidney transplant 1 yr 3 months. would like to know others experience with medication for...

Recent kidney transplant patient

hear from other transplant patients their post transplant experiences.