Bebtelovimab Treatment?: 41 years with the... - Kidney Transplant

Kidney Transplant

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Bebtelovimab Treatment?

pops81 profile image
18 Replies

41 years with the same kidney I have been as cautious as I can and still have a life. With that said I tested positive this past Sunday with Covid and have a mononclonal antibody treatment scheduled for tomorrow with Bebtelovimab. I was wondering if anyone is familiar with this antibody.

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pops81 profile image
pops81
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18 Replies
Ultimateyank profile image
Ultimateyank

I had transplant 2 years ago and got Covid a month ago. I had this treatment that you are writing about and I felt great almost immediately. I still have phlegm and little coughing boughts but tested negative within 4 days and haven’t looked back. I went in scared because of immunity issues but it was easy

pops81 profile image
pops81 in reply toUltimateyank

Thank you that is reassuring..glad you did so well. Looking for positive results myself as I go in today for the treatment.

ProudAmma profile image
ProudAmma

I was able to get Evusheld in June. Then came down with Covid in July and had the monoclonal antibody IV that you are scheduled to have. My symptoms were moderate and, after 2 1/2 weeks, I am now testing negative for covid. I still have fatigue but was able to get over covid without too much trouble. Also, my transplant doctor let me stop taking Myfortic during the infection.

pops81 profile image
pops81 in reply toProudAmma

thank you for the info..fatigue seems to be my biggest thing right now with a moderate headache..glad to hear you got though it ok..

ProudAmma profile image
ProudAmma

That’s how I continue to feel. Hang in there and I hope you feel better soon

swimmings profile image
swimmings

41years with one kidney. You are doing great. Was your kidney from a twim?

pops81 profile image
pops81 in reply toswimmings

My kidney was from my sister and at the time the team said the match was as close to a twin as physically possible. I do think thats a big reason for my success with the kidney. I was extremely fortunate and continue to be..

swimmings profile image
swimmings in reply topops81

That is great. I got my kidney from my twin sister in 1960 . Up until now I have had very few problems . I guess I can expect it to fail after 62 years. Just keep up whatever you are doing and you could beat my life record. Wish you all the best.

pops81 profile image
pops81 in reply toswimmings

wow that is an impressive run. I hope things get worked out for you and continue the run..take care

peregrin profile image
peregrin

After four jabs, I tested positive for COVID in June. I had a shot of bebtelovimab and had no adverse reaction. Whatever the reason, my COVID symptoms were very mild, a slight cough and headache.

pops81 profile image
pops81 in reply toperegrin

Very thankful that my experience sounds like that and was up to date on boosters. So far mild, but chronic headache has been the worst and hoping the MAI works well for me too. Thank you for the info

BulldogFan profile image
BulldogFan

Have heard nothing but positive with this treatment.

Gardner-NY profile image
Gardner-NY

Hello pops81, My spouse had his transplant Nov2018 and we both are vaccinated/boosted and living so isolated since March 2020, you'd think we live in a bubble. We have stayed covid19 free so far. My question is, this monoclonal treatment that is planned, do you stay in the hospital as a patient to get it or how does it work? My spouse and I have not allowed anyone in our home since Dec 2018 nor we go into their home, no restaurant, no movies, no outside crowd events, and much more 'no's. We do the absolutely only necessary things like food and pharmacy. Curious if you know how you got the virus. I am so sorry you have it and hope this treatment works great for you.

pops81 profile image
pops81 in reply toGardner-NY

In the first year I pretty much did the same, except groceries etc. and going during slow periods. Since vaccinated (+ Boostered) and always wearing a mask we even took a trip over-night to Mohegan casino. I accepted the risks and as it turns out my wife likely gave it to me in my our own home when she thought she had just a head cold. She had been visiting memory care facilities for her elderly mom. She sleeps with a cpap machine so I had no chance (LOL) as it just pumps out tiny droplets all night long. The monoclonal antibody (MAI) treatment has evolved over time. It started with requiring an IV over two hours and now is just two syringes injected into a IV needle in your arm, and you are watched for an hour for any side effects. Takes about 15 minutes. The success rate is extremely high but must be administrated within 5 - 7 days of the onset of Covid to be beneficial. I was seen at the local urgent care on a Sunday within the first 24 hours and the treatment is as an out patient, was scheduled for Tuesday. Two days post treatment a little tired and a mild cough but getting restless because of the quarantine. I never did have a fever or drop in blood oxygen, felt more like the flu, but was taking no chances. I can understand your concern about going out since your husband had a more recent kidney transplant. Take care

Gardner-NY profile image
Gardner-NY in reply topops81

Thanks for writing me back. Stay well. I appreciate all the details.

Leekee profile image
Leekee

I had covid in May. Was hospitalized for 3 days to receive IV anti viral Remdesimir. The fatigue is still ongoing but otherwise very grateful.

CA_Coast profile image
CA_Coast

Congratulations on 41 years! Had Betelovimab one week ago today and tested negative today. No side effects. Very mild Covid.

pops81 profile image
pops81 in reply toCA_Coast

Thanks, have received it since and too only mild covid. Very thankful for this treatment..take care

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