Epstein Barr Virus (EBV): My wife had a... - Kidney Transplant

Kidney Transplant

3,620 members2,033 posts

Epstein Barr Virus (EBV)

Daijb profile image
1 Reply

My wife had a transplant 1 year ago. The TP team knew that the donated kidney had EBV (age 79). Most people carry EBV early on in life. My wife tested negative for EBV so the team gave an extra antiviral for 6 months. My wife developed a mouth lump near the tongue 3 months ago which was so painful she needed to be on morphine. This was fully investigated by a very competent consultant who like every one else thought it must be cancer but did a full lab test after a biopsy. It turned out to be an ulcer caused by EBV. The lump has now magically completely disappeared. I gather this can happen after a biopsy when the body finally discovers the virus. So never assume a lump is cancer and be aware of EBV.

Written by
Daijb profile image
Daijb
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Eyak1971 profile image
Eyak1971

Thanks for the info. After a transplant new medical problems can appear that require updated info. This forum gives us that important info. Thanks again and take care. Note - a second medical opinion can be important and necessary. Others should take note of that from your story.

Not what you're looking for?

You may also like...

Container Gardening?

Hi:) I’m 18 months post transplant. CMV finally in check and am feeling pretty good (as of...

18 Month Post Transplant May 16th

Good afternoon, I’ll be 18 months post transplant this week on May 16th. As some of you likely...

Just saw Endocrinologist; Cutting Back on Insulin

I’m pretty thrilled! Pre-transplant I had controlled my type II diabetes for a little over 15 years...

Wegovy

My Nephrologist suggested that I start taking Wegovy for obesity. No matter what I seemed to do...

retiring: Anti-Rejection Megication Questions

I’m retiring on July 3, 2024. This means I’ll no longer be forced to use CVS Specialty to receive...