Bk virus again.

[Rmatthew]

Hey everyone, hope you’re all doing well.

Before i posted on this page about having the bk virus, my creatinine is still high because of it, but the virus came down the last 2 weeks. They said about holding off on giving me medication for the virus because it was stable at the moment. I was wondering that if anyone had started the medication they’re talking about and what were the side affects of them? In case I do need to go on them myself,

Thanks!

[Cazzy41]

I have had the BK virus for over a year now, the only thing that has been done for me is stop the Cellcept and put a 5mg prednisone in with my Tacrolimus 3mg. I have never been ill with the virus it’s just there and playing around with my blood results. I was told a couple of weeks ago that I should come to terms with the fact I may never get rid of it unless the kidney fails and I’m back in dialysis!! Not exactly what anyone wants to hear to be fair. I am 3 years post transplant today!! And it’s not been easy but it’s better than the alternative. Good luck and please keep us updated xxx

[Drdetroit]

I am 9 yrs post transplant. I had 3 rejections in the first 2 yrs. after massive steroids I was ok for 4 yrs, then my creatnine started bouncing around. After another biopsy showed BK, my prograf was reduced & cellcept eliminated for a while. BK is now gone, I do blood work monthly & I take 1mg prograf 2x daily & 500 mg Cellcpt 2x daily. I never had BK, but my donor did. Before Bk, my creatnine was 1.4 & after the biopsy was 2.9. it is now steady for 2 yrs at 2.5

[Drdetroit]

If the meds they want to give you are IV steroids, if you are diabetic they will make your blood sugar go crazy & make you very hungry. Also some insomnia

[Charly1429]

I’m, 8 months post kidney transplant, I’ve had mild Bk Virus now it’s out of my blood, but one Nephrologist said it always stays in your urine? Also, never had issues while I was on BK.

[KidneyBham]

I am 2 1/2 years out, I got the BK virus 6 months after transplant, I was also taken off cellcept and put on 20 mg of prednisone for 2 months than tapered off to 10 mg along with tacrolimus 4 mg x2 a day. The Bk virus is finally almost out of my body, I had no problems with it and my numbers got up into the millions, I’m less then 3k now. I pray you have a positive outcome and there are no kidney rejections in Jesus name.

[mtwskk]

Bk is not something you do wrong, it's something that your donor had and is controlled by decreasing your your tag/program. I'm 9 years out and have had it twice. You just need to get the bk virus tested if you are susceptible to the virus. The test tell all. I didn't get tested one year and my Creatine went up to like 2.3 from my baseline of 1.8 quickly. They thought the kidney was rejecting put me in the list for a new one. They we found the bk. It took about 4?months to get the counts back in line and I think they did a couple of pred spikes. But they got rid of it. It's now 3 years later I test one a year or if my Creatine spikes. Good luck it's not a bad thing just something you need to be aware of. There is one other virus like this but I don't get that one so I forget the name it's something like cv.

[Rmatthew in reply to mtwskk]

Hi, my doctor said that I most likely had the bk virus when I was on dialysis but was being controlled by my immune system, and then when I got the kidney it was kinda reactivated and that’s what’s made my creatinine go up, and that they had me on too high immunosuppressants