I am scheduled for my transplant surgery on 2/8/21. I’m very excited about getting off of dialysis and feeling normal again but, there is always a but, what are the chances that my new kidney will come down with the same diseases that took out my original kidneys?
My kidneys failed because of microscopic polyangiitis and C3GN. The C3GN destroyed my kidneys in about 48 hours. I’m so worried the same will happen to my new kidney. Some of the anti rejection drugs are the same drugs used to control the microscopic polyangiitis so that should be helpful. Has anyone here lost their transplanted kidney for the same reason you kidneys originally failed?
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bisley
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Bisley, there’s always risks with everything. However getting a transplant can give you freedom and other than some food exceptions & added precautions you will continue with your predialysis life. Visit with your team. They should be able to answer your specific questions about your previous illnesses with your kidney & what to expect. Just be open, honest & have your questions ready for them, then make your decision. Best of luck to you.
Don't already be worried about losing your kidney, when you haven't even received it yet. If you have doubts and questions you need to be discussing this with your transplant team.I was told that my deceased donor kidney would only last 10-12 years. Here I am 21+ years later living well! Be positive and happy that you are given a second chance at life.
Just remember LIFE is filled with chances. Could your transplant fail? Yes. But you could also walk across the street and be hit by a car.I never regret having my transplant. Live life to the fullest and ENJOY!
Hi there! I’m 6 months post kidney transplant and have the an other forme of C3 glomerulopathy which is the dense deposit disease. I was diagnosed at 19 yrs old and received my transplant at 26 yrs. it took about 5 years before a started dialysis for two years. My doctors have told me that in most cases the original disease comes back but the timing is different with every patient and even some patient the disease doesnt come back, but very rare.
So far, i have no evidence of disease in all my blood and urine workups. It is important that you ask these questions to your team. They are the best suited to anwser these appropriately to your condition.
Best of luck and it is truly the greats gift!!
Amy
No. I was transplanted with the second one in 1982 and still have it. The first one failed because it wasn't a good match, but good enough. It lasted a month and rejected because of some other reason then what made my original kidneys fail.
Yes, Everything might happen. I see it as a bet. You are 69 so it is perfect for your age compared to the life expectancy of the kidney and your age therefore I highly prefer you to go for it. But I was young when it occurred. I was 12 years old, going dialysis, tests everything, etc. Anyway, I think History repeats itself. There is no need to be optimistic. Statistics are out there, rejection is the reality especially If you're young. It has been working for me for 10 years but What these 10 years benefit me when it happened again? What these 10 years benefit me when I go people for another kidney like a beggar and to start from scratch? there is no real treatment for this. So we deceive ourselves, even our bodies by taking immunosuppressive drugs.
I don't understand some optimistic people. They call it a gift , ''transplant is a big gift, second chance''😅 as though we were born without kidneys. Yes, it is a gift like a matryoshka doll ,you expect something you get the same.😄
I had kidney disease as a teenager. I had very high blood pressure too. I felt a little bitter that I had to watch getting colds and was different than my carefree friends. I was lucky that the disease progressed very slowly and I didn’t need dialysis until my late 40’s. I had a transplant that failed right away and was 3 months in the hospital with a staph infection and had another transplant a year later that has lasted 27 years. I do think I am a lucky person to get this precious gift from my donor who was deceased. You have to be more positive.
Thank you for sharing. We all have angry moments. I cannot know how you truly feel having a transplant at an early age. Having to understand and accept it at 12 I truly don't think i would have had the strength. I do feel foolish at the age of 71 when I compare my issues with other kidney patients who are so much younger. My only hope is that scientist Will some day develop a way to grow kidneys in the lab from a person's own DNA so that donors are no longer needed and rejection is not an issue. Until then be angry because anger sometimes brings change.
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