I am now 10 weeks post-transplant and things are generally going fine. My lab numbers are generally good. I have started working full time (my company allows me to work from home) and that keeps me busy. There are still days when I get exhausted but other days I am so full of energy. I still get the tremors from the tacrolimus. A few questions:
1) I do feel lightheaded and dizzy sometimes. Has anyone else experienced this?
2) Has anyone experienced eyesight changes? Change in eye glasses numbers?
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shash8363
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First of all...Congratulations on being SO Well, only TEN weeks after your Transplant👍.
A few, what the Experts would call, Minor Changes WILL occur, So Soon, after your Transplant. Feeling 'Dizzy', Light Headed, or plain 'Out Of It'? Well yes, quite probably, your body is recovering from Major Surgery- no Really! Make no mistake, it really is. As regards Eyesight changes?.....Again probably 'Normal', and I would suggest that, unless you start to actually Lose your sight, you simply 'Mention' this at your next Check Up.
With regards to the 'Tacrolimus Trembles'....have you EVER had a 'Better Excuse' for Dropping The Tea? As time goes on and your Dosage is adjusted, coupled with you body 'acclimatising' to the Drug, these Episodes will decrease dramatically.
You seem to be 'Doing' fine certainly, nothing that you have said, rings any 'Alarm Bells'. Are you having any Numbness, at the Top of the leg, bellow the Transplant area? Are you feeling 'Strange', or is this what you are describing? Are you getting 'Odd' Head Feelings- not quite Headaches??? Ditto in your Tummy? A Kind Of 'Malaise' that comes and goes? Maybe 'Peculiar' Sensations, almost anywhere? Well, as I said above, Congratulations you are Totally 'on Track'! (Take a laxative, if you get too 'Bunged Up')
Finally, a few more Pointers, from an 'Old Hand' (I had my Transplant in July 2013). Do keep Attending, your Check Ups. Do Report anything, that you, feel 'Uncomfortable' about. Try NOT to worry, about all 'this', you will be Fine. Why, in a few years time, You will be Advising, someone New- just Like I am now!
Please DO contact, any of, us again, if you need to shash, or PM me- if you need to discuss 'Anything' more Personal. Can you, in any event, let us know how you are 'Getting On', in say, six months? I know that I speak for us all here, in wishing you,
I have noticed my eye sight has changed but then I attribute that to aging and possible cataracts. Congratulations on doing so well. I am now 9 months past transplant and meds have been adjusted due to lab results so don’t be alarmed. I have not gone back to work yet ( flight attendant) as I doubt I could work a 14 hour duty day from anywhere to 1-6 days in a row. Besides I still have to go back through training, etc before I can fly again. Hopefully early next year.
Congratulations on your transplant. Glad you are doing well. I am 14 months post transplant. I do have mild tremors from Tacrolemus, but it’s not too bad. I did suffer some hair loss, but it’s coming back. I was diagnosed with cateracts 2 months ago. My optometrist and two ophthalmologists told me that the cataracts are a result of the steroids. The transplant nephrologist does not agree that it’s due to steroids. According to the ophthalmologist age related cataracts develope at a much slower rate. I had no signs of cataracts a couple of weeks before the transplant surgery at an eye exam and full blown cataracts one year after - this points to steroids as the culprit. Regardless, cataract surgery is super common and as a bonus, you get vision correction if that was an issue. Check in with your optometrist to be sure. Best of luck with the rest of your recovery.
Congratulations on your transplant! My eyesight has changed. The eye doctor said it was the steroids. In the beginning when I was on higher doses of the medicine, it was terrible. Everyone is different. I was actually on Tacro, and after they changed it to Envarsus, that also helped my eyesight. I am 3 yrs and 9 months post. As time goes by, things will get better, and you will get adjusted to your medicine. Best wishes to you.
First, make sure you drink plenty of water daily. That can be a cause for your lightheadedness. I am 20 years post transplant and not drinking enough still effects me that way. Your immunosuppressants are also a likely cause. Any of these side effects/issues make sure you report them to your transplant team. They can't help you with your problems unless they know about them. My dose of the tacro that I was taking got lowered several times that first year. It takes awhile to get you on the right dose for you. That first year is a real learning experience not only for you but also your transplant team. Everyone is different and reacts differently to medication.
Keep us posted on how you are doing. Take care and report to your transplant team!
Congratulations on your transplant. I am eight months out. It seems, based on age, that it usually takes a minimum of three months to begin to feel some consistency of feeling like your old self. I am 64 and it took me four months until one day I woke up and felt like consistently better.
I was feeling dizzy and light headed for at least six months. I think the medication effects the dizziness and light headed feelings.
Remember this is a huge operation and the healing process takes a great deal of time. Not sure how bad you felt before the transplant or if you were on dialysis but if so, your body is recovering from that stage as well.
Did not have any eyesight issues but had a variety of other issues. Edema I. Legs and ankles flat out exhaustion and still nap on many days. Some abdominal discomfort etc
Be patient you will probably go through some ups and downs but you will eventually feel a new sense of normal soon enough.
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