I’ve been on dialysis for 9 months now and I can just say now that dialysis is going okay “with a straight face. Not smiling when I say it yet. I’ve gone through all the stages of grief and I still struggle some days but it’s getting better. I know I will smile saying it soon.
mum grateful for this community that makes me feel I’m not alone in this. We all in this together. I wish you all the best.
Hearing you say you are adjusting gives me hope. Thanks for sharing.
I'm surprised at how well I feel since starting the cycler. I got my catheter in Jan, did manuals for 2 months and now the cycler for the last week. Doing manuals sucked up my whole day and I was constantly tired. Now I set up, sleep through the night, disconnect and resume my day as before the surgery. I'm slowly getting my appetite back (it was hard to eat while dwelling) and have started walking a few minutes a day. I'm waiting for the shoe to drop and feel bad again.
Some days you will feel better than others....and thats okay because those are the days you need to take extra care of yourself and make sure you are eating and drinking correctly to keep your lab values in line
Imaanforever, be patient, it is heartbreaking to go through so much, the fear, the stress, the unknown, and sometimes the pain. Dialysis is overwhelming at first, it is the start of a long, long, long wait. But, at the same time is the beginning of a process in which you chose to live better and to take care about you better in so many ways that you will be surprised of how much you and your caregiver will learn. Be strong, be resilient, have your favorite people around you for times like these, when you try to find strength to keep up with this new lifestyle. I know how it feels to be next to somebody that felt once just like you, my husband, just like you, has been through what you are experiencing. He has been in dialysis for three years, it takes time to adjust, but I know you will get there, share your story, ask for help, be in contact with your medical team and most importantly, be confident that things will get better, be patient. I wish you good times, and will keep you in my prayers. Stay safe and keep fighting.
thank you. Wish you and hubby all the best too 💕
Good post. I was determined not to go on dialysis. I felt I had failed and my life was over. Nearly 11 months later, its not how I would choose to spend 12 hours a week. However its like everything else on this bloomin journey..you just get on with it. Yes you grieve for your previous life and its a real learning experience adapting to it. However it is keeping us alive. I did a 9 hour shift at work yesterday. I was on my feet all day, never had time for a lunch break. I was in a better state than some of my younger, healthier colleagues. The week before I started dialysis, I couldnt even climb the stairs. There are definitely a lot of benefits to dialysis 😁😁😁
wow, amazing 😊
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