wasting away

[Radars]

can anything be done regarding muscle wasting with proteinuria and ckd I do exercises but it makes no difference,

[Shedman]

Load-bearing and weight exercises are the best bet, along with balance; standing on one foot; standing from seated without using your arms; lifting a carrier bag containing cans of food - improvised weights..Slow movement is good, combining weight with control and balance.

But only if you have a positive energy (and protein) net intake - how are you doing with diet?

[Radars in reply to Shedman]

I have no testosterone due to my locally advanced prostate cancer my testosterone has never recovered since finishing treatment in 2016 and now have osteoporosis, I think I am wasting because I am leaking protein.

[Shedman in reply to Radars]

I'm not a doctor, but web search suggests lack of testosterone is very much linked to muscle loss and weakness.Did hospital or GP make any comment on this?

Likely good to ask GP..

I also googled 'NHS testosterone replacement therapy'

This could be a far bigger issue than your proteinuria, though adequate protein intake is necessary.

[Radars in reply to Shedman]

they won't give me any testosterone in case there is any sleeping cancer cells, I would increase protein but it seems dodgy with proteinuria, what is good for one is not good for the other, I have had 2 zoledronic acid infusions for my osteoporosis.

[Shedman]

Has your testosterone been measured?Have your doctors justified their absolutist stance: the balance between prostate cancer risk and catabolic muscle loss?

Nutrition lesson: dietary protein is digested and broken down to amino acids..

Amino acids are also 'protein', just the smallest units of.. require no further digestion, create no further waste products..

As I've said previously, I think hydrolysed beef collagen powder would be a great way to increase your protein intake without risk to your kidneys.

Recommend you ask nutritionists at igennus.com (cambridge uk), much as they can't give specific medical advice, only generalities.

But knowing level of testosterone and having justification for zero goal, by gp/consultant, is something to pursue.

I'll private message you one thing might help, though suspect I've messaged same previously.

Google AI summary of search for "why is protein harmful in ckd"

[Radars in reply to Shedman]

I have been talking to endocrinologist and she said not a good idea for testosterone. and that it is best to concentrate on my osteoporosis.

[Shedman in reply to Radars]

I can only repeat myself:"Has your testosterone been measured?

Have your doctors justified their absolutist stance: the balance between prostate cancer risk and catabolic muscle loss?"

..does testosterone also impact your osteoporosis?

In healthcare self advocacy, one has to be aware of the risk that doctors focus on one specific target without reference to the whole of a patient..

There are uncomfortable compromises to address.

We as the patient need to be involved in decisions about such compromises..

Testosterone:

Risk around prostate cancer

Risk around muscle loss and debility

Seeing an uncle tomorrow - since prostate surgery etc, he has long done Tai chi for strength and balance.

Compromises?

For instance, some doctors get carried away with generalities:

Reducing cholesterol is good

Reducing salt intake is good

But cardiologists will encourage a healthful salt intake - yes, it isn't simply bad.. the interaction with blood pressure isn't the only aspect..

And going below 5 (uk scoring) cholesterol score worsens all cause mortality, reduces longevity.

[Radars in reply to Shedman]

my psa is undetectable

[Shedman in reply to Radars]

I'll quiz an octogenarian friend.But, whilst he's had prostate cancer surgery, etc, he doesn't have thr kidney complication..

He has clearly suffered not uncommon elderly changes to bones, with sarcopenia..

He's lost height.

But the balance of testosterone things for you, is between adverse influence on possible remaining prostate cancer cells, and worsening sarcopenia and osteoporosis..

You have a right to advocate for how you feel and where you place the priority in your healthcare on this conflicted matter.

Maybe, just a very little testosterone would give you considerable muscle/bone advantages, with small prostate risks.. ? - I don't know.

[Radars in reply to Shedman]

if you're friend has surgery it is better outcome than rt/ht what I had which had escaped my prostate t3b no mo