Can anyone provide feedback on a Kidney Dis... - Kidney Disease

Kidney Disease

12,751 members5,201 posts

Can anyone provide feedback on a Kidney Disease gift guide?

SpryGuy profile image
3 Replies

Hi all,

I’ve been working on putting together a comprehensive gift guide specifically for people with Kidney Disease: kidney-disease.curated.spry...

We all know that moment - someone texts “let me know if there’s anything I can do to help,” and while their intention is genuine, it’s hard to respond with specific needs. That’s why I’ve spent time researching and consulting with patients to create a curated list that turns those well-meaning offers into concrete ways people can actually help make daily life with kidney disease easier.

The guide is available at kidney-disease.curated.spry... and includes everything from practical items to comfort items to links to free online resources and communities.

I’d really appreciate it if you could take a look and let me know:

- What essential items am I missing?

- Are there items on the list that aren’t as helpful as they seem?

- What else would you want to see in a resource like this?

Written by
SpryGuy profile image
SpryGuy
To view profiles and participate in discussions please or .
3 Replies
CatOnACloud profile image
CatOnACloud

Wowzers! This is a great guide. It’s obvious you’ve put a lot of thought and time into doing this project, and I, for one, thank you.

A few minor points:

“The best gifts for those who have suffered a Kidney Disease” should be singular, so The Best GIFT… is how I would write it. You’re referring to the compendium of the guide on the whole, as one guide, one gift, rather than everything in it which would be gifts plural. Read it out loud.

Also, is the Health Unlocked community—us—not a great resource :-)

I really love the products you have found and recommend, they can be so helpful! I just know that I will enjoy having a copy of this resource when it’s done.

Keep it small if possible, as it is; putting too much in it might be overwhelming. I like it rather as it is. So while I can probably recommend more stuff, I think one can get there through the links you’ve left, and again, people won’t be overwhelmed as-is. This is very cool! ~Adrienne

jflorax profile image
jflorax

This is really good. There is an app that you can add (I forgot the name of it), but it's for scheduling visitors so people don't get overwhelmed by too many people at once. When people have a transplant or other surgery, visitors can get overwhelming.

Would you also consider adding a section on homemade ideas/suggestions? For example, a coupon book for chores, transportation, grocery shopping, grass cutting, laundry, etc. After surgery, it's hard to do these things. Or maybe an example schedule for dropping off meals with links to kidney-friendly recipes.

KajNybom profile image
KajNybom

Start with don't panic! Can GFR be improved? how about a food log book?

Not what you're looking for?

You may also like...

Check out our Kidney Disease Education courses on the Kidney Learning Center!

Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our...
KateyC_NKF profile image
Partner

Anyone with polycystic kidney disease and managing to stay healthy despite all that?

Hello! I am a 27-year old female who was diagnosed with the hereditary polycystic kidney disease at...
Kissthesky profile image

Kidney Disease?

Just a quick question for everyone.......We have had a lot of "newbies" on HealthUnlocked lately...
WYOAnne profile image
NKF Ambassador

Comprehensive CKD and healthy Diet app

If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I...
2023CKD profile image

Can you have a kidney problem that doesn’t show in an ultrasound or blood tests?

Hi, my names Paul, I’m 39 and find myself between a rock and a hard place. (apologies that this...
Paul_Mac profile image

Moderation team

See all
PattyM_NKF profile image
PattyM_NKFModerator
DorisL_NKF profile image
DorisL_NKFModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.