Asking further questions

[eaggirl1856]

I posted on here 3 months ago as I had concerns about kidney disease. I had some lovely helpful replies and was grateful back then.

I have recently had routine blood tests again and the Serum Creatinine level returned at 96 umol/L (previous test 6 months ago was 86). The eGFR level 50 mL (previously 57). My GP practice marked both of these as "satisfactory".

As I said in my earlier post, I have awful itching and know this could be due to kidney disease. It affects my scalp and face mainly and find when it is bad, if I put my fingers through my hair, I have loads of loose strands coming out. My hair is and always has been thick so I am not unduly concerned but I just hate this itching and find it quite unbearable at times.

When I have yet again queried the results with my GP (phone consultation only) I am told "everything is ok" so yet again. No information given about having tests again in a few months. I am quite bewildered to say the least.

[userotc]

After speed-reading previous replies 3m ago, I think the main consensus from most was that youve little to be concerned about, at least in terms of ckd and mortality.

My view is that you should monitor all kidney data including serum and urine and consider Nutritional Therapy (NT) in order to try to maintain the reasonable function you have plus other health benefits. My mum is aged 68, has maintained stage 3a for 14y 🤞🤞 with latest egfr the same as yours and adopts NT. She doesnt have the itch symptom you have but does have other issues, most notably accelerating albuminuria. But she has only a single kidney.

She was also not diagnosed by NHS at the outset but youve had views on that in the previous post, most of which I concur. Sadly we cant/dont rely on NHS now so adopt DIY healthcare.

[eaggirl1856 in reply to userotc]

Appreciate your reply. I consider I eat a good, well balanced diet. I don't each much meat, mainly vegetarian meals from scratch. I cannot remember the last time I had alcohol either. I have queried about having urine tests especially as I am prone to cystitis from time to time (twice this year) but I am told it is not necessary. I am still undergoing tests/procedures from bowel cancer surgery exactly 3 years ago now with another follow-up CT scan this coming Sunday

[barbara55109]

The hair loss may be normal aging. I take biotin vitamins daily to help with that. My doctors know and approve. Have your phosphorus levels checked for the itching. It could be high phosphorus or a million other things

[eaggirl1856 in reply to barbara55109]

thanks for your reply. I don't think phosphorus was tested. I realise hair loss is natural with ageing but it is ONLY when I have the itching that my hair loss occurs. I eat a well balanced, mainly vegetarian diet and lots of veg/fresh fruit. Eggs, Bananas, Milk (biotin is found in these) I eat every day plus blueberries and grapes.