Covid, meds do they help?: I have CKD stage... - Kidney Disease

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Covid, meds do they help?

Sarah_402 profile image
17 Replies

I have CKD stage 3a, I just got covid. I was thinking about calling my doctor tomorrow to see if I need meds to help. I have body aches, headache, and sore throat. I was vaccinated in Nov. Not sure if it’s worth it to take meds and if it hurts the kidneys..could you share your experiences?

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Sarah_402
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17 Replies
kellyscats1 profile image
kellyscats1

only my experience..I was diagnosed with covid in Dec..bad timing with holidays comng..I had been vaccinated with multiple boosters.. not too ill..cough and fatigue and bad stomache..Considered paxlovid but with ckd you need a reduced dose.. sometimes narder to find..was also concerned about kidneys and because i was so heavily vaccinated i skipped rhe paxlovid.. did not feel too bad but decorating and wrapping for my sons visit was challenging but doable..

just what happened with me

Sarah_402 profile image
Sarah_402 in reply to kellyscats1

thank you kellyscats1!

barbara55109 profile image
barbara55109

Because of my CKD I got Molnupiravir. Paxlovid is not for those of us with CKD. See the list of anti virals here - cdc.gov/coronavirus/2019-nc....

Sarah_402 profile image
Sarah_402 in reply to barbara55109

Thank you for the info Barbara55109:)

I'm stage 4 and got Covid in January. I called the telehealth line and got a reduced dose of Paxlovid. I took it for 2 days and I can tell you it's the worst medicine I've ever taken and I didn't take any more of it. My Covid was pretty severe for several days then started to lighten up. I had 2 vaccines and a booster but it had been quite a while since the booster so they probably didn't help.

Sarah_402 profile image
Sarah_402 in reply to

Thank you for sharing LLWegeners:) I’m feeling a bit better today so I think I’ll hold off calling my dr til tomorrow if I think I need it.

TableTennisMama profile image
TableTennisMama

The beginning of June I also got Covid. I called my doctor and he ordered a low dose of Paxlovid (low-dose due to my chronic kidney disease stage 3B) And I started to recover just after the five days of drugs were finished. Nevertheless it was a hellish week. Sometimes I had flank pain so I’m pretty sure it was attacking my kidneys. Of course I don’t know what it would’ve been like without the drug.

Sarah_402 profile image
Sarah_402 in reply to TableTennisMama

Thank you for sharing TableTennisMama!

Halebopp profile image
Halebopp

I’ve had 2 basic vaccinations & 3 boosters - last one in October 2022. I got Covid about 2 weeks ago. I have stage 3A, borderline 3b CKD. The doctor prescribed Paxlovid (reduced dose) & I started it at day 5 & took it for 5 days. I had upset stomach, bad indigestion, nausea, fatigue, & just generally felt unwell. I don’t know if this was from Covid or Paxlovid. I also had very bad lower back pain. I finished the Paxlovid 7 days ago & today, for the first time, I feel nearly normal.

Sarah_402 profile image
Sarah_402 in reply to Halebopp

Thank you Halebopp! Yesterday was bad but it is not as bad today so I’m going to wait till tomorrow and see.

renegade70 profile image
renegade70

i had covid in 12/22. i was prescribed the regular 5 days of paxlovid. my covid symptoms cleared up within that period, however, when I went in for my next labs in 1/23 my egfr dropped from 50 to 40 then 2 weeks later down to 36 then 2 weeks later down to 27. All the time my creatinine rises. By March my egfr finally began to inch up. In May it was 47. My neph said that covid has been shown to negatively affect the kidneys. she did not feel that paxlovid was the culprit. I'm not convinced that it did not play a part in all of this. I am now very anxious about going in for lab work and my hope like everyone is that I remain stable. My very best to you.

Sarah_402 profile image
Sarah_402 in reply to renegade70

Thanks for sharing bubbles53. That is so scary! I would have been really anxious too if that happened. With covid I felt horrible the first day but things got better each day that went by, so I never asked my doctor for the med. I’m now day 7 and feel fine. I don’t have labs for a month or so but if they went down I’ll let you know. My eGFR was around 50 right now. I’m glad yours went up.

Sarah_402 profile image
Sarah_402 in reply to renegade70

Hi Bubbles53, Can I ask you during this time after covid when your eGFR went down were you more tired than usual? I got over covid but I’m so tired. I may go for labs and see how my eGFR is. Thanks!

renegade70 profile image
renegade70

Hi Sarah, I'm not sure if I was tired from the covid, egfr decline or lack of oudoor exercise since I was sick in Dec. and not going out for walks as I usually do. But I do know several people who had covid, and do not have ckd ,and have had a lack of energy for months. My best to you.

Sarah_402 profile image
Sarah_402 in reply to renegade70

Thank you bubbles53:)

Blackknight1989 profile image
Blackknight1989

Stage 4 CKD not vaccinated as my primary care doctor and nephrologist all decided with my comorbities an elevated remiss if a “significant CVD event” that the risks of the vaccine outweighed any benefit. Turns out the doctors were clairvoyant as study after study shows the vaccines had significant cardiac and clotting risks as well as efficacy was a joke at 2/3 months but I digress. I had the Delta variant in August of 2021 and ran the normal course with a period of 9/10 days asymptomatic then the night fevers of up to 104 started lasted for about 7 days. Fever would start in the late evening, peak about 2/3 AM and gone by 8:00 AM. Further developed COVID pneumonia but not serious enough to go to the hospital. Pretty much lasted the entire month of August 2021. Further, had the Omnicron variant January 2022 but the natural immunity from the previous infection limited that illness equivalent to a cold. Only symptoms were stuffed-up nose and a cough from the drainage. No Dave see effect on the kidneys as eGFR was 17 prior to both infections now it’s 23 (both number are averages). No meds except an off label triglyceride lowering med that studies in the UK showed it shortened the duration of the symptoms and it worked for me. I’d be very careful with any current treatments for COVID. Here are a couple of studies showing the potential for AKI with current treatments. The emergency approval approach by the FDA and WHO is really endangering folks with no warnings of potential adverse effects of these understudied and rushed treatments for a virus that wasn’t particularly dangerous except to the elderly and those with immunodeficiency. Anyway here are a couple of studies of the 50/60 done. I hope it helps you or another. My best in your CKD journey!

ncbi.nlm.nih.gov/pmc/articl...

pubmed.ncbi.nlm.nih.gov/333...

frontiersin.org/articles/10...

Sarah_402 profile image
Sarah_402 in reply to Blackknight1989

Thank you Blacknight!!

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