I have just had my appointment which I have waited 8 months for cancelled because of the junior doctors strike next week and she could not give me another date.
I just cannot believe my bad luck here.
I just do not know what to do now - how will I know if its progressing or not.
I am on 20 gfr at the moment and I was relying on the consultation to find out if things were going well or not.
I have yet another blood test coming up but that is for my own gp with whom I have an appointment with at the end of March.
Its wait wait wait all the while now and I just do not know what is happening - I am scared and frightened - no one seems to care anymore.
I don't know where you are. Do you have something like Quest which is a clinical laboratory. They do blood test for people for a fee. You can do your blood test there, at least you'll get the results and have an idea what is your latest GFR. Sometimes the blood test results do give you a brief description telling you if it's too low or too high. Just an idea.
hello thanks for your kind reply - I am in the uk and there is nothing you can do about it. its awful especially like me you are on the edge and you don't know what is happening whether its good or bad.
I did buy some blood tests from Amazon but haven’t used it. Could that be an option. I’m in the USA so my primary doctor runs labs in between visits with the nephrologist.