I'm new here (hi!). I have ADPKD, diagnosed about 4 years ago and my mother was diagnosed about 15 years ago. Both of us are still early stages.
Moved to Houston 2 years ago and found a nephrologist right away, based on (very few) reviews. He didn't seem to have answers to my questions and always prescribed meds, so I switched to another nephrologist that my PCP recommended. While I like and trust him more, he missed testing my parathyroid even though I told him my mother has secondary hypoparathyroidism. When I called his office to ask for a new lab form his nurse actually argued with me. This was months ago, and I'm not due to see him again until January.
I had regular bloodwork done last week and asked my PCP to add PTH, it came back hyperactive (120). So now I'm having doubts about my new nephrologist, and especially his nurse.
Anyone have advice on finding "the right" nephrologist? My internet searches seem to turn up more dialysis centers than actual doctors.