Hi there

I have chronic debilitating kidney infections

Often hospitalised

Negative cultures

And my recent hospital stay showed negative bloods

I am still at home recovering and have read a lot on people with infections but negative tests

I have had ultrasounds and will be having a biochemical renal scan this week

I constantly argue to get antibiotics and this time a 7 day course didn’t treat it :/

Is that because I carried on working etc and didn’t rest whilst taking them :/?

I have had this for a long time and my urologist just wants me to keep having dilation under anaesthetic or a new thing tested on animals called cystitat :/

I am desperate for help and information and feel I am bein let down and wondered if your organisation is something I could get help/information/advice from or if you could point me in the right direction

Thank you!