CRPS Crisis

[JPLivin]

Hello Friends,

I am a 57 Year Old Male and because I believe it’s relevant to this subject, I have PTSD with 21 Big Traumas. I have been doing EMDR Therapy weekly for last year.

5 years ago after being hospitalized for Swelling/Redness and Severe Pain. This was caused by Deep Massage.

Fast forward and after 5 years of getting unnecessary XOLAIR treatments monthly I have been correctly diagnosed with Severe CRPS.

In fact going through Flare up Crisis currently.

I also have pacemaker so some medications are a nonstarter like Gabapentin which I have tried in past with Zero help.

THIS NEEDS TO BE TREATED LIKE A “SICKLE CELL ANEMIA CRISIS” Protocol.

I need inpatient Pain Relief through IV PAIN MEDICATION like Dilaudid for 3-4 days to bring down Pain level to a 2-3 and then I can manage on my current 4x20mg oxycodone per day. As a side note I have also been diagnosed with Fibromyalgia.

At 57 I am bedridden for weeks at a time during flares which are more common now because left untreated.

CRPS also known as the Suicide Disease, doesn’t have to be this way.

I am looking to get into local Charleston MUSC Pain Center to replicate the Sickle Cell Protocol for Pain.

if that fails, I wil be traveling to a Caribbean island facility that under doctors care will provide this opioid treatment which after trying everything for me, is the only real option that will reduce flare so manageable until next flare.

Open to suggestions. Once I get myself managed, I promise to fight for everyone. This is nuts!

I want my life back!

Thank You!